Lyme disease foundations and associations in Europe

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sat 29 Mar 2008 15:57

Poland:

association: http://www.borelioza.org/



Edit: removed borelioza.net on the advice of Kornish .
Last edited by Yvonne on Thu 22 May 2008 9:11, edited 1 time in total.
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

Kornish
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Joined: Thu 22 May 2008 4:29

Re: Lyme disease foundations and associations in Europe

Post by Kornish » Thu 22 May 2008 4:35

The main Lyme forum in Poland is:

http://www.borelioza.dl.pl (registration required)
Language of forum: Polish

The dedicated tick borne diseases lab (very reliable tests by opinion of most patients, significant agreement between tests results and symptoms)
http://www.cbdna.pl/borelioza.html
email: biuro@cbdna.pl
(common foreign languages accepted)

Offer: Real time PCR Borrelia, PCR Borrelia, PCR Bartonella, PCR Babesia, Western blot Borrelia
(Soon will run website in English and will take blood for testing from the whole Europe via couriers)
Note that Real time PCR gives concentration of Borrelia in blood and there is a chance that this test can be used for treatment monitoring. Unlike the regular PCR this test will pick up even small amount of bacterial DNA. Regular PCR requires at least 500 DNA copies in samples to test positive; real time PCR will pick up as little as 5.

Polish Lyme Association is as Yvonne provided
http://www.borelioza.org
email: stowarzyszenie.borelioza@gmail.com

Poland has 3 dedicated LLMDs who focus on tick borne diseases in their practices and about a dozen other MDs who agree with position of ILADS and will treat patients with Lyme disease ILADS way.

rlstanley
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Joined: Mon 3 Dec 2007 2:53

Re: Lyme disease foundations and associations in Europe

Post by rlstanley » Fri 23 May 2008 4:06

Any Lyme disease associations or help in the Middle Eastern countries?

Rita

Cobwebby
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Re: Lyme disease foundations and associations in Europe

Post by Cobwebby » Sun 25 May 2008 2:47

Just curious-what protocal or guidelines are followed in other countries. Is the rest of the world caught in the same controversy as the USA?
The greater part of our happiness or misery
depends on our dispositions,
and not on our circumstances.
Martha Washington

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sun 25 May 2008 19:59

Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

Cobwebby
Posts: 1716
Joined: Mon 29 Oct 2007 0:55

Re: Lyme disease foundations and associations in Europe

Post by Cobwebby » Mon 26 May 2008 2:14

Thank you Yvonne.

Seems we just don't know how good we have it here in the US-at least there is a controversy.
I even got to choose what protocal I wanted to follow. Since short term(3 weeks) didn't work, I was offered long term.
The greater part of our happiness or misery
depends on our dispositions,
and not on our circumstances.
Martha Washington

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stf
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Location: Poland
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Re: Lyme disease foundations and associations in Europe

Post by stf » Fri 22 Aug 2008 3:22

Kornish wrote:Poland has 3 dedicated LLMDs who focus on tick borne diseases in their practices and about a dozen other MDs who agree with position of ILADS and will treat patients with Lyme disease ILADS way.
Can you tell me who they are? I live in Poland and I need one.

STF
http://eisenbits.homelinux.net/~stf/lym ... urope.html

Fin24
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Joined: Sat 8 Mar 2008 20:14

Re: Lyme disease foundations and associations in Europe

Post by Fin24 » Fri 22 Aug 2008 4:27

Poland:

association: http://www.borelioza.org/

and if you scroll upwards youd see this too, Stan

gee I thought you were more pc savvy than this
by Kornish on Thu 22 May 2008 3:35

The main Lyme forum in Poland is:

http://www.borelioza.dl.pl (registration required)
Language of forum: Polish

The dedicated tick borne diseases lab (very reliable tests by opinion of most patients, significant agreement between tests results and symptoms)
http://www.cbdna.pl/borelioza.html
email: biuro@cbdna.pl
(common foreign languages accepted)

Offer: Real time PCR Borrelia, PCR Borrelia, PCR Bartonella, PCR Babesia, Western blot Borrelia
(Soon will run website in English and will take blood for testing from the whole Europe via couriers)
Note that Real time PCR gives concentration of Borrelia in blood and there is a chance that this test can be used for treatment monitoring. Unlike the regular PCR this test will pick up even small amount of bacterial DNA. Regular PCR requires at least 500 DNA copies in samples to test positive; real time PCR will pick up as little as 5.

Polish Lyme Association is as Yvonne provided
http://www.borelioza.org
email: stowarzyszenie.borelioza@gmail.com

Poland has 3 dedicated LLMDs who focus on tick borne diseases in their practices and about a dozen other MDs who agree with position of ILADS and will treat patients with Lyme disease ILADS way.
The main Lyme forum in Poland is:

http://www.borelioza.dl.pl (registration required)
Language of forum: Polish

The dedicated tick borne diseases lab (very reliable tests by opinion of most patients, significant agreement between tests results and symptoms)
http://www.cbdna.pl/borelioza.html
email: biuro@cbdna.pl
(common foreign languages accepted)

Offer: Real time PCR Borrelia, PCR Borrelia, PCR Bartonella, PCR Babesia, Western blot Borrelia
(Soon will run website in English and will take blood for testing from the whole Europe via couriers)
Note that Real time PCR gives concentration of Borrelia in blood and there is a chance that this test can be used for treatment monitoring. Unlike the regular PCR this test will pick up even small amount of bacterial DNA. Regular PCR requires at least 500 DNA copies in samples to test positive; real time PCR will pick up as little as 5.

Polish Lyme Association is as Yvonne provided
http://www.borelioza.org
email: stowarzyszenie.borelioza@gmail.com

Poland has 3 dedicated LLMDs who focus on tick borne diseases in their practices and about a dozen other MDs who agree with position of ILADS and will treat patients with Lyme disease ILADS way.

just EMAIL them and ask for help!!!

good luck

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stf
Posts: 64
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Location: Poland
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Re: Lyme disease foundations and associations in Europe

Post by stf » Mon 25 Aug 2008 13:49

Fin24 wrote:and if you scroll upwards youd see this too
You see, Fin24, the problem is I have been in contact with those people for almost 1.5 months now, and I haven't seen any such list despite I asked them.

I have a fear that Kornish's revelations are too optimistic. Hopefully I am wrong.

STF

cave76
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Re: Lyme disease foundations and associations in Europe

Post by cave76 » Mon 25 Aug 2008 16:51

Stan,

So often what is written on a site doesn't translate to what is actually done. I know that's true here in the States.

I do know there was another poster here (and on LNusa) who is in Poland, whose father is a doctor, and that poster travels to the US for treatment. So perhaps it's a lot harder to get treatment in Poland than the support groups suggest.

I don't know.

I'll P.M. you with the screen name of that poster and perhaps doing a search here and at Lymenet.org might give you his/her name. (I haven't seen that poster on either forum for a while, so I don't know if he checks in anymore.)

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