Search found 564 matches

by ChronicLyme19
Mon 8 Feb 2016 2:27
Forum: Off-Topic Café
Topic: Really neat story about a different type of zebra
Replies: 0
Views: 4141

Really neat story about a different type of zebra

This isn't the CVID type of zebra, but a woman who had to fight to prove she had two rare gene mutations. Zebras do exist, and zebra zebras exist. https://www.propublica.org/article/muscular-dystrophy-patient-olympic-medalist-same-genetic-mutation Edited to add: "Dr. Garg, who has studied lipodystro...
by ChronicLyme19
Tue 2 Feb 2016 5:50
Forum: Unconventional
Topic: Polycystic Ovarian Syndrome
Replies: 0
Views: 3823

Polycystic Ovarian Syndrome

Right now I'm reading a book called Period Repair Manual by Lara Briden. It goes over the difference between adrenal induced PCOS and ovarian/insulin resistance induced PCOS, and then other causes of high androgens and hormone anomalies like illness, functional hypothalamic amenorrhea,and endometrio...
by ChronicLyme19
Tue 2 Feb 2016 5:25
Forum: Unconventional
Topic: Oxygen concentrator
Replies: 4
Views: 4589

Re: Oxygen concentrator

Sorry to hear you aren't feeling well. I'll chime in hear because I was having oxygen problems before I got diagnosed. My oxygen saturation levels were falling below 85 and I was about to be placed on an oxygen tank. A few thoughts... -How do you know you have an oxygen issue? Have you had your doct...
by ChronicLyme19
Tue 2 Feb 2016 5:13
Forum: Lyme Café
Topic: The Case for Teaching Ignorance
Replies: 2
Views: 1196

Re: The Case for Teaching Ignorance

Can we expand the list of people that need to take the course from medical professionals to everyone in STEM (science technology math and engineering)? :)
by ChronicLyme19
Tue 2 Feb 2016 5:05
Forum: Medical Topics
Topic: CVID/Immune Deficiencies, TNF Gene Mutations, and Lyme
Replies: 16
Views: 13164

Re: CVID/Immune Deficiencies, TNF Gene Mutations, and Lyme

Thought this might belong in this thread for what it's worth. I recently moved states and went to a new immunologist. New immunologist noted he had several people who had an onset of CVID concurrent with the onset of chronic Lyme and based on his medical review of their cases they did not have CVID ...
by ChronicLyme19
Wed 18 Nov 2015 4:00
Forum: Unconventional
Topic: UV Light Blood Treatment
Replies: 2
Views: 3907

Re: UV Light Blood Treatment

Ah, so I believe the appropriate term for this is actually Ultraviolet Blood Irradiation.
by ChronicLyme19
Tue 17 Nov 2015 2:38
Forum: Published Studies
Topic: Nanotrap measurement of OspA urinary shedding may lead to improved testing
Replies: 9
Views: 2281

Re: Nanotrap measurement of OspA urinary shedding may lead to improved testing

- and, for example. Borrelia miyamotoi do not express OspA
- i.e., the test method can theoretically hardly reliably detect all Borrelia infections!
That was one of my concerns...
by ChronicLyme19
Sat 14 Nov 2015 1:30
Forum: Off-Topic Café
Topic: Prayers for Paris
Replies: 0
Views: 4021

Prayers for Paris

Prayers for those in Paris. So horrible.
by ChronicLyme19
Tue 10 Nov 2015 2:33
Forum: Unconventional
Topic: UV Light Blood Treatment
Replies: 2
Views: 3907

UV Light Blood Treatment

I was talking with a friend who said they were thinking about a UV light blood treatment. Has anyone heard of this and has more details? What are the risks of the UV light damaging your blood? What are the chances that Lyme hiding elsewhere in your body comes back and reinfects your blood? What is t...
by ChronicLyme19
Mon 9 Nov 2015 2:25
Forum: Published Studies
Topic: Nanotrap measurement of OspA urinary shedding may lead to improved testing
Replies: 9
Views: 2281

Re: Nanotrap measurement of OspA urinary shedding may lead to improved testing

“The anti-OspA mAb epitope is conserved in common pathogenic species of Borrelia The antigenic epitope OspA236-239 is highly conserved among major pathogenic Borrelia strains, which include: Borrelia burgdorferi sensu stricto, several Borrelia burgdorferi sensu lato (Borrelia garinii, Borrelia vala...