Search found 110 matches

by Joanne60
Tue 28 May 2013 20:52
Forum: Medical Topics
Topic: any symptoms that are specific to Lyme?
Replies: 13
Views: 3820

Re: any symptoms that are specific to Lyme?

Being aggressive is a sure sign she is out of her comfort zone. Make an appointment to see your usual GP one that is familiar with your condition and try again perhaps start by giving him the information on the LDA leaflet I linked for you. Don't give up too soon with NHS they need to understand thi...
by Joanne60
Tue 28 May 2013 18:06
Forum: Medical Topics
Topic: Lyme disease and/or polymyalgia rheumatica ?
Replies: 2
Views: 7203

Re: Lyme disease and/or polymyalgia rheumatica ?

I was diagnosed with PMR after many other diagnosis along the way. Once diagnosed with Lyme Disease and on antibiotics all my symptoms improved. Although I only had a clinical diagnosis my response to antibiotics was clearly seen by GP and LLMD - I was able to taper and come off steroids which were ...
by Joanne60
Tue 28 May 2013 12:58
Forum: Personal Stories
Topic: First post! Diagnosed with probably Lyme
Replies: 4
Views: 8505

Re: First post! Diagnosed with probably Lyme

Hi Just reading this on Lyme Disease Action website talking about Spirofind test Boulder Diagnostics are now marketing a new test for Lyme disease - the SpiroFind. This is based on research at Radboud University, Nijmegen in the Netherlands and aims to detect an active infection, whether early or la...
by Joanne60
Tue 28 May 2013 10:21
Forum: Medical Topics
Topic: any symptoms that are specific to Lyme?
Replies: 13
Views: 3820

Re: any symptoms that are specific to Lyme?

Hi It is very difficult to get GP's to prescribe longer term antibiotics for possible lyme Diagnosis especially with the situation as it is in the UK but the more you find out about this disease the easier it is to discuss with your gP without being totally fobbed off. I was fortunate that it was my...
by Joanne60
Mon 27 May 2013 21:10
Forum: Medical Topics
Topic: any symptoms that are specific to Lyme?
Replies: 13
Views: 3820

Re: any symptoms that are specific to Lyme?

Hi Joel It is often quoted that Lyme Arthritis is not common in UK due to different species of Borrelia here in Europe but in reality the lack of research means these statements are not substantiated by any significant studies. My main symptoms were arthritis or should I say joint pain I had no mass...
by Joanne60
Sat 25 May 2013 11:13
Forum: Published Studies
Topic: Question for Dr MacDonald please
Replies: 5
Views: 2449

Question for Dr MacDonald please

Dr MacDonald On this forum you have talked about the temperature when researching Borrelia I couldn't find the thread but my question is rather different. If human tissue samples are stored in -80 degree Celsius bio-repository would they still be able to use that tissue to find Borrelia if it were t...
by Joanne60
Fri 12 Apr 2013 15:34
Forum: General Topics
Topic: B31 Based diagnostic kits Fail with European Infections
Replies: 21
Views: 3890

Re: B31 Based diagnostic kits Fail with European Infections

Just returning to earlier posts about her diagnosis. According to her video account her diagnosis was in fact made by a Belgium doctor who specialises in CFS, Prof Meirleir who she consulted in person with, he said in 40 years of practice he had never seen a medical work up as extensive as hers but ...
by Joanne60
Mon 11 Mar 2013 23:13
Forum: General Topics
Topic: Live-stream panel with Fallon and Blumenthal March 11
Replies: 34
Views: 6733

Re: Live-stream panel with Fallon and Blumenthal March 11

Tick-Borne Disease Alliance (TBDA) What a great Forum today! Special thanks to Senator Kirsten Gillibrand and Senator Richard Blumenthal and Congressman Chris Gibson for speaking such powerful words about the importance of advocacy and better diagnostic tools! For those of you that missed it, no wo...
by Joanne60
Wed 20 Feb 2013 11:32
Forum: Published Studies
Topic: Improved Culture Conditions for the Growth and Detection of
Replies: 3
Views: 1044

Re: Improved Culture Conditions for the Growth and Detection

Bagge
Completely ignoring new research doesn't keep us all in the dark. And trying to control what people wish to post or say doesn't make your views always correct either.

Joanne
by Joanne60
Mon 18 Feb 2013 22:49
Forum: Published Studies
Topic: Improved Culture Conditions for the Growth and Detection of
Replies: 3
Views: 1044

Improved Culture Conditions for the Growth and Detection of

http://www.medsci.org/v10p0362.htm Int J Med Sci 2013; 10(4):362-376. doi:10.7150/ijms.5698 Research Paper Improved Culture Conditions for the Growth and Detection of Borrelia from Human Serum Eva Sapi1,2 , Namrata Pabbati1, Akshita Datar1, Ellen M Davies1, Amy Rattelle1, Bruce A Kuo1 1. Research D...