Search found 167 matches

by phyfe
Wed 6 Aug 2014 22:31
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Camp Other...please tell me when you're done thinking this through and I'll add it then. ;)
by phyfe
Wed 6 Aug 2014 22:29
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Welcome back phyfe :D Glad to hear your family matter settled and that you are back to your old humorous self! I have a couple of other questions to add into the section on immune type testing (I think), that you added earlier. It isn't really specifically immune related, but more related to a disc...
by phyfe
Wed 6 Aug 2014 18:49
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Ach!!! How did you know? :woohoo:
by phyfe
Wed 6 Aug 2014 18:14
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

I see there has been a lot of discussion here on self-diagnosis vs. medical diagnosis. It is very easy to separate the two in the survey and thereby allow the researchers, etc. to distinguish between the two. I don't see this as a problem and it will be addressed with the final survey format. Thanks...
by phyfe
Wed 6 Aug 2014 18:09
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Phyfe - We hadn't heard from you in a little while and the last thing was that Duncan said you weren't feeling very well. I was just hoping that you're OK. I know you had a lot of the burden of creating the questionnaire format and I just hope everything's alright with you and wanted to ask if you ...
by phyfe
Wed 6 Aug 2014 17:59
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Were you ever treated with cortico-steroids? Yes_________No__________ If yes, dates from when to when?_____________________________________ Were you ever treated with IVIG (intravenous immunoglobulin)? Yes_________No__________ If yes, dates from when to when?________________________________________...
by phyfe
Fri 1 Aug 2014 21:42
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

I always post that I've gotten something. If I haven't posted, it's because questions need to be answered. Thanks again for all your support.
by phyfe
Fri 1 Aug 2014 21:40
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Hi all, OK. They are in no particular order (except for my top 3 most horrible symptoms a little ways down) and most are descriptions of how they felt - not the true names like 'neuropathy' and such. Maybe Camp Other can help out with the proper names? Here are my: Crazy Weird Horrible Symptoms Ext...
by phyfe
Fri 1 Aug 2014 21:38
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

Have you ever been examined for immune dysfunction stemming from Lyme disease? __No __Yes If yes, which of the following immune markers were you examined for: __HLA Peptides __Cytokine/chemokine panels (e.g. CXCL13) __ECGF molecules This has been added now Duncan. Phyfe, can you format this thing i...
by phyfe
Fri 1 Aug 2014 21:30
Forum: General Topics
Topic: Patient-Formulated Lyme Disease Survey Draft
Replies: 357
Views: 41841

Re: Patient-Formulated Lyme Disease Survey Draft

If people could refer to line numbers, that would be very helpful to me. Thanks!