Search found 43 matches

by NellyP
Fri 23 Nov 2007 18:48
Forum: General Topics
Topic: A critical appraisal of the ILADS and the so-called LLMDs
Replies: 119
Views: 17671

Re: A critical appraisal of the ILADS and the so-called LLMDs

Yes ... ILADS calls the CD-57 test the "Stricker Panel;" the test is considered a worthless waste of money to most of the rest of the medical community. From what i have been able to assess from what people have posted over the years, the CD57 test does not give clear-cut answers re: how Lyme patie...
by NellyP
Thu 22 Nov 2007 23:52
Forum: General Topics
Topic: A critical appraisal of the ILADS and the so-called LLMDs
Replies: 119
Views: 17671

Re: A critical appraisal of the ILADS and the so-called LLMDs

1) Everyone does it so it's okay? Is that what you're saying? I didn't say it was OK, I said it just IS/WAS/WILL BE (probably?). And from what I have seen, the bad ones do it and the good ones do it too, that's all I am saying. I obviously don't think it's OK, I left my job over it (among other thi...
by NellyP
Thu 22 Nov 2007 12:27
Forum: General Topics
Topic: A critical appraisal of the ILADS and the so-called LLMDs
Replies: 119
Views: 17671

Re: A critical appraisal of the ILADS and the so-called LLMDs

One can belittle these "sins" as much as one wants, but the fact of the matter remains that Stricker has been caught lying in the past -- specifically for further NIH funding -- and this is okay because he is a beloved LLMD? NO, it is NOT okay. I don't care who the hell he is. He lied. He altered s...
by NellyP
Tue 20 Nov 2007 1:42
Forum: Published Studies
Topic: Erythema Migrans
Replies: 47
Views: 9940

Re: Erythema Migrans

(primary) EM after one year seems to be very unusual but then ... I got my very typical EM rash about 5 or 6 months after I became severely ill with Lyme, and I got ill after a long camping/riding trip in Ireland and France where I got bitten several times. Lots of Lyme symptoms but EM rash only ap...
by NellyP
Thu 15 Nov 2007 0:49
Forum: Personal Stories
Topic: Sarah Olson: Recovery with IV Rocephin*)!*)!!
Replies: 82
Views: 37292

Re: Sarah Olson: Recovery with IV Rocephin*)!*)!!

Sarah, Tell the person who told you you're telling too much of your story that I think it is an incredibly VALUABLE thing your are doing, that it probably would have helped me infinitely when I first became so ill, and everything, absolutely everything fell around my ears, and everybody, ABSOLUTELY ...
by NellyP
Mon 12 Nov 2007 23:47
Forum: Personal Stories
Topic: Tara Stoop: No More Seizures Thanks to Lyme Treatment
Replies: 4
Views: 5162

Re: Tara Stoop: No More Seizures Thanks to Lyme Treatment

I had seizure-like episodes, up to 20 per night, like go to sleep for a few minutes and bang! awake with what felt like a thump in my head/heart/whole body, try to fall asleep again, and as soon as I was asleep for a few minutes bang! again...and again...and again etc. I called them my Wike In Frigh...
by NellyP
Sun 11 Nov 2007 0:29
Forum: Medical Topics
Topic: homicidal&OCD
Replies: 14
Views: 2552

Re: homicidal&OCD

I don't think you can rule out Babesia because of lack of anemia. If you have babesiosis you may have had anemia when you first got infected but after a while the bugs can be located in other cells, sequestered in the endothelial of cerebral blood vessels for eg and cause all kinds of symptoms witho...
by NellyP
Sat 10 Nov 2007 17:49
Forum: Published Studies
Topic: 2003: 39% dead Swedish heroin addicts have B. Elizabethae
Replies: 5
Views: 1172

Re: 2003: 39% dead Swedish heroin addicts have B. Elizabethae

Or from body lice, Raoult et al have done several studies on homeless people and bartonella quintana endocarditis. Below is an article that describes some of the many arthropod-borne infectious conditions homeless people can suffer from Nelly http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=Sh...
by NellyP
Fri 9 Nov 2007 18:18
Forum: Personal Stories
Topic: Sarah Olson: Recovery with IV Rocephin*)!*)!!
Replies: 82
Views: 37292

Re: Sarah Olson: Recovery with IV Rocephin*)!*)!!

I have been reading Sarah's story with trepidation (although I kind of followed it "live" as it was happening from the time (at least from the time when she joined sci-med waaaaaay back then:)!), yet this is absolutely great to read it all in flowing order. I keep thinking I should do the same and w...
by NellyP
Thu 1 Nov 2007 16:32
Forum: Personal Stories
Topic: Recovery from ALS/Lyme: Dave Marr
Replies: 4
Views: 7927

Re: Recovery from ALS/Lyme: Dave Marr

Thanks a lot, Sarah, for telling us here the story of Dave Marr, it is SO important for us to have stories like this one all in the one place, so that we can just pull it out when we want to communicate with someone. I remember reading his name before and I remembered reading some success stories fr...