Lyme Disease Still not Treated

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ShowPow
Posts: 1
Joined: Mon 12 Jul 2021 16:05

Lyme Disease Still not Treated

Post by ShowPow » Mon 12 Jul 2021 16:56

Hello everyone , Im a 23 yo man :bonk: ,here where I live no one understand what really Lyme is so i have no people to rely on :( , my story started 3 years ago , when i went in America in Pennsylvania , and one morning i discovered a Tick on my left elbow. The tick has been removed carefully from a friend and same day i started have high fever. In that period i even assumed Ciprofloaxicin for a suspect infection on my testicles (thing that was not true in the end). Immediately ,the same day i was bitten, a lymph node (under my right arm) became huge and staid like that for 20 days. I was without Insurance so i could have not be visited ( not enough money for private). When i went back in Italy (here Lyme is pretty unknown and not common at all) I did a test that resulted IGG = 0.9 where more than 0.9 was considered positive and less than 0.9 negative , so it came out borderline (doubt). My Doctor said that i did not have it otherwise i would have seen a higher antibody level. I was pretty happy with it until ... i started developing terrific symptoms. My legs literally starting to shake at the minimum work. Pain from the elbow to each of my fingers like burning , feet nerve burning like hell. Now i was 19 yo back then , so when i heard my doctor say is fine you don t have lyme i thought about being FLOXED (Intoxicated by the Ciprofloaxicin). But more time passed more i was confused because i did in this years so many test such as MR of my knees and feet where nothing it has being found, so if it was caused by the antibiotic didn t I have to see the damage on the tendons on the RX and various MR i did? Instead it was like i always had something invisible , something that cannot be seen with RX but is there. Now 3 years passed and Im not gonna hide the fact that i wanted to kill my self so much this years. I went through depression and ugly thinkings , me that i always was a person laughing at everything and be grateful i discovered how weak I was front of a problem like this. Today Im definetely more strong and suicide thoughts are definetely gone away , im even ashamed to think i have really thought about that. I m stronger but still not diagnosed. This
September I will go do a test in Germany where probably they are more expert on it ( I did actually another antibody test after 2 years and a half with negative result but here the test are pretty basic test (IGG IGM Borrelia) not specific (Like ELISPOT) in fact a young girl got diagnosticated after 8 years of Lyme here in Italy too and before no one trusted her) . If you read everything until now THANK YOU , if not then THANK YOU anyways. I just needed to tell to someone after I have visited more than 30 doctors almost laughing at me (some even laughing and making jokes) when i told them that I could have Lyme Disease. One last wish would be if someone could tell me if I have actually symptoms of Lyme ( and reply to 2 questions under the symptoms list down below) or I m maybe confusing them with symptoms of being intoxicated by Ciprofloaxicin ( For who does not know being intoxicated by this Antibiotic gives you muscle weakness and tremors and Neuropathy). The symptoms that i had and still experiencing are explained year by year are reported here below:

DAY ONE TO 20 DAYS :
  • High fever
  • Lymph node huge
  • Fainting episodes (almost never faint completely)
  • Legs sometimes are so under fatigue tha almost drop
FROM 20 DAYS TICK BYTE AND 10 DAYS ANTIBIOTIC TO 6 MONTHS :
  • Burning arms, all the way from elbow to each finger , and wrist burning with pain too.
  • Burning Feet (Right one) and light pain to the knees
  • Vision super sensible to light (really too much) plus seeing black spots and purple
  • Weakness all over my body (neck muscles tremors , legs muscles tremor under work so when i use them for stairs for example)

FROM 6 MONTHS TO NOW ( gradually got worse) :
  • Legs a little bit better due to exercises approach and supplements but still have same problem under stronger work
  • Knees with Rheumatoid Arthritis symptoms (Orthopedic said if you didnt tell me that you were bitten i would actually diagnose you RA because your knees becomes red under effort and hurt like a sort of inflammation is generated continuously) (Im 23 years old and played soccer with 0 problems in my knees and 0 RA cases in my family.
  • Tremors in my fingers ( pls who have had or still having Lyme Disease , do you actually have this? I have a lot and is so scary)
  • Peroneal nerve of the Foot does a kind of "Bzzz" if i press with my finger (Peripheral Neurophaty)
  • Vision super sensible still
  • Weakness all over my body still
I JUST WISH I COULD UNDERSTAND WHAT I HAVE , BECAUSE IN MY SITUATION I DONT EVEN KNOW WHO DO I HAVE TO FIGHT. :(

1) CAN IT MIGHT BE THAT I HAVE LYME ? AND CAN AN IGG GIVE FALSE NEGATIVE? OR RELY ON A ANTIBODY TEST IS ENOUGH? BECAUSE SYMPTOMS DONT GO AWAY ...
2) AND FOR WHO KNOWS WHAT IT MEANS TO BE FLOXED , IT IS MORE PROBABILITY THAT IM FLOXED OR UNDER TICK INFECTION (GIVEN MY SYMPTOMPS AND DUE TO THE FACT THAT I HAD THE BYTE CLOSE TO THE USE OF CIPRO)?

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