Tara Stoop: No More Seizures Thanks to Lyme Treatment

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CaliforniaLyme
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Tara Stoop: No More Seizures Thanks to Lyme Treatment

Post by CaliforniaLyme » Thu 1 Nov 2007 21:21

From old Lyme Alliance story archives
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By the GRACE OF GOD

I am writing to hopefully get you to inform others, and save them the trouble I have had to go through. I will try to be brief, and upon request I do have ALL files and tests results to back up my story.

You see, two years and two months ago, I had a Grand Mal seizure. I was hospitalized and medicated. I have continued to have seizures off and on since then, with them getting progressively worse since March. I have been on Depakote, Dilanton, Tegratol, and Topamax. I was told these seizures were from a car accident I had in 1989, when I hit my head on the windshield. End of discussion: accept it , take medications, don't drive, and move on with your life. One option was to look for a scar, and do surgery. Although this was a hard decision to make, I was told I was a good candidate. It was scheduled for the end of August.

By chance, I met a Lyme disease specialist, Dr. Gregory Bach. My husband and I went to meet with his wife, who is a dog trainer, to see if our dog could be trained to help with my epilepsy. When we arrived she was not available yet, so we chatted with her husband. I explained a little of my health condition and why we were training our dog. Something I said seemed to spark a question regarding my diagnosis. After speaking with Mrs. Bach about training our dog, she asked my husband and me if we would mind talking some more to her husband, as he was very interested in my medical history. After several hours of talking, he hit us with a bombshell! "I think you have been misdiagnosed. I think you have Lyme disease. If you would be available, I would like to run tests tomorrow." Talk about speechless!

We went home not knowing what to think, but within one week every test they took came back positive for the disease. The test Dr. Bach did was sent to IgeneX Laboratories in California, and is much different than the regular test run at a regular lab.

All I can say is by the grace of GOD!

To make a LONG story short, I have been treating with antibiotics, am seizure- free, and feeling the best I have in two years. My neurologist from the University of Pennsylvania, (who was to do my brain surgery before it was canceled), agrees now, after testing, the seizures were caused by the Lyme disease going undiagnosed for so long, allowing it to progress to the late stage.

PLEASE help me to inform more doctors and patients, and save them the terrible time my family and I have gone through. I am a 29-year-old female, married to the most supportive and caring husband, and have 3 children who all suffered through years of anguish. The doctor now wants my whole family to be tested for Lyme disease.

This could, and should, have been avoided with a simple blood test in the beginning. Should I even mention how much blood work is done monthly when on these kinds of seizure medications? I ask for your help in spreading the word and helping others that may have the same condition.

Thank you, Tara Stoop

kelmo
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Location: Valley of the Sun

Re: Tara Stoop: No More Seizures Thanks to Lyme Treatment

Post by kelmo » Sun 4 Nov 2007 23:07

Thank you for your story.

My daughter leaked to her Lyme Doc that I had been having night seizures. I could've been infected for the last 17 years.

CaliforniaLyme
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Joined: Sun 30 Sep 2007 15:49
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Re: Tara Stoop: No More Seizures Thanks to Lyme Treatment

Post by CaliforniaLyme » Mon 5 Nov 2007 0:10

Wow, Kelly, no good!!! On the the Dr. Gregory Bach tape he has before-and-after patients and he has this one little girl who had dozens of seizures a day and hten after treatment- none!!!!!!!!!!!!!!!!

badtime
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Joined: Sat 3 Nov 2007 12:58

Re: Tara Stoop: No More Seizures Thanks to Lyme Treatment

Post by badtime » Mon 12 Nov 2007 20:56

I had seizures non-stop. Partial complex seizures. It lasts about half a year. Now I'm free.

NellyP
Posts: 43
Joined: Mon 29 Oct 2007 18:22

Re: Tara Stoop: No More Seizures Thanks to Lyme Treatment

Post by NellyP » Mon 12 Nov 2007 23:47

I had seizure-like episodes, up to 20 per night, like go to sleep for a few minutes and bang! awake with what felt like a thump in my head/heart/whole body, try to fall asleep again, and as soon as I was asleep for a few minutes bang! again...and again...and again etc. I called them my Wike In Fright (WIFs). They were so bad, i thought I would just die in my sleep, my husband virtually got no sleep (or very little) for about a month before I was able to travel to the South of France to a doctor who believed in Chronic Rickettsial infections and started treating me with doxy. After 2 days, i was able to sleep through the night!

The WIfs came and went for quite a long time even on treatment but never as bad as that horrible month just before I started treating.

I have been on Lariam now for 3 years, (plus several oral abx combos) I don't have any WIFs at all, except recently when I thought I was done with the Babesia and i could stop the Lariam (I take artemisinin as well), within 4 weeks of stopping the Lariam my WIFs made a come back, only for a couple of nights bec I resumed taking the Lariam, and they have stopped again, but I am quite amazed that after such a long time on Babesia treatment, I am still not able to stop the lariam.

Nelly

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