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The morning after

Posted: Fri 31 Jul 2009 20:21
by Spanky
After having watched the 'big show'...I have to honestly say that I feel all completely cheap and dirty the morning after, and no, I do not respect them in the morning. I just feel screwed, used and abused.

And I mean that in respect to both sides...I cannot decide who(m?) I despise more. Does anyone care about helping anyone? Or is everyone now so heavily invested in their own egos that they have forgotten what this is supposed to be all about?

Sometimes I think that being a Lyme patient is like going out onto the street in the middle of a drive-by shootout between groups of rival gang-bangers. Even though you are completely innocent..you are just going to windup getting it...

The 'Steere' gang...the 'Steere-oids'?

Gawd. They are a cold, disppassionate bunch that don't seem to want to have to worry too much about the effects of their expert opinions on actual human suffering too damn much.

Offering your 'expert' opinion that the suffering of others is just in their heads...tells the rest of the world just exactly how precious little is in yours. Not to mention what a perfectly insensitive a** you are. Got news for you...after about eight or nine years of this...you can compile a quite a history, a medical file full of objective, quantifiable evidence of these so-called "subjective" complaints.

I'll bet if you had a choice of partying with them...or a convention of funeral directors...9 out of ten would happily go with the mortuary boys.

And then, there are the "Lyme activists'...now take them... (please).

Looked like the Pat and the Phyllis huddled with the Wonk, there, during a break...and I am thinking, wow, what a tragedy...what a complete waste, this whole thing is...

...just like in Shakespeare, MacBeth:

"In the CALDA-ron boil and bake;
Eye of newt, and toe of frog,
Wool of bat, and tongue of dog"

"Double, double toil and trouble;
Fire burn, and CALDA-ron bubble".


W.W. of the east...and W.Wonk of the West...would you really be all that uspet or surprised if someone decided to drop a house or a bucket of water on them?

I mean it...a plague on both your houses.

Re: The morning after

Posted: Sat 1 Aug 2009 23:53
by LymeEnigma
Bravo--well stated. This has been my stance for a couple of years, now; I wish I could say it has been helpful in combating this "Lupus-like disease" that continues to plague me. It's not the same as before the six months of zithro: I sleep normally, I don't get the stiff, frozen necks or the Lyme rages ... but the swollen knees, the "chicken pox" and facial rashes, the headaches, and the fatigue are present heavily 1/4 to 1/2 of every month. I can't stand either camp's views on why this is, not to mention what they're doing about it....

*crawling back into my cave, now*

Re: The morning after

Posted: Sun 2 Aug 2009 6:42
by Spanky
LymeEnigma:

I can't stand either camp's views on why this is, not to mention what they're doing about it....
Thanks, LE (and hope you are feeling better)...

...yeah, I would like to say that "I am mad as hell and not going to take it anymore"...but the truth is...I am just mad as hell, and that's pretty much it.

Seems like we just have to take it. No choice. Does either side give a damn? About the patients' welfare?

And what in the hell was the point of all of this three-ring binder circus, anyway?

"Raising consciousness"?

What a waste. Think of all the time, energy and money that has been thrown at this latest round of "I'm right, you're wrong". And for what? Who is this helping?

(Well, other than the "LLMD"s, that is. See, that's really interesting when you think about it...they sort of profit from this controversy, from having patients referred to them as a result of the "dynamics" of this setup, don't they)?

But this one...this one is on the heads of the Pat and the Wonk. This was their damn grand scheme...and they declared it an "important victory". This is the direct, end result of all their confrontational, aggressive strategies and tactics. They're responsible for it...(and they're already now trying to distance themselves, backing away from it by claiming that the IDSA controlled the panel selection process).

Real stand-up "leadership", there. Real integrity.

So, let's watch, shall we?...and wait and see if it was worth all of this...

Re: The morning after

Posted: Mon 3 Aug 2009 17:27
by rlstanley
Good one, SR.
SR wrote:
Sometimes I think that being a Lyme patient is like going out onto the street in the middle of a drive-by shootout between groups of rival gang-bangers. Even though you are completely innocent..you are just going to windup getting it...
Yup. And the vultures--with money to be made & bizzaro claims to promote--just sit there and feast on the wounded and the desperate caught in the crossfire.
SR:
....this one is on the heads of the Pat and the Wonk. This was their damn grand scheme...and they declared it an "important victory". This is the direct, end result of all their confrontational, aggressive strategies and tactics. They're responsible for it...(and they're already now trying to distance themselves, backing away from it by claiming that the IDSA controlled the panel selection process).
Yup, that's going to be the excuse for when this exercise backfires.

BTW I smell a petition coming on with that one. Gotta get something to rally the troops around; keep 'em from thinking too much & busy before they ask too many legitimate questions. They even might go to Blumenthal & ask them.
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