TEN YEARS to feel better! Holy Crab-Now I'm really glad that I went to an LLMD.
Seriously. What did it do for you? I don't know. You mean you got better faster? I thought you were saying that you still have problems? Are you saying that an "LLMD" can make you better, faster?
I stopped antibiotics years ago. Why? Because I had the distinct impression that they were not doing any good. I wasn't getting any better. I could tell, for awhile, that they were helping. The tremors stopped, for one thing. But after awhile, seems as though I just plateaued...got in a rut. Didn't go forward or backwards.
Yes. Ten years. Actually, though, twelve. I was bitten in '98. I was diagnosed in August, 2000. So, ten years since diagnosis.
But from what I've seen online, from people who have returned to normal, that's not all that unusual...seems to me. There seems to be this ten year window I have noticed.
Okay...how, exactly, do you know that "Bb continued to disseminate"? You mean that your symptoms continued?What I mean by failed is- my PCP treated me according to the IDSA guidelines-yet I continued to get worse, the Bb continued to disseminate .
As one body system after another deteriorated-none of the mainstream specialists I was referred to was willing to address the issue of Lyme Disease with anything more than a shrug.
Well...here's why I am so interested in the perceptions questions...
Lyme patients are told that the cause of the illness is Bb.
And so, they get treatment for Bb...and their symptoms continue.
And so, they figure (perhaps logically) that the Bb must also be continuing to exist.
See, I am wondering if the simple mindset, expectation that if you kill the organism...then you should be better, is what is driving a lot of the controversy.
That's not necessarily true.
The continuing symptoms may have nothing whatever to do with a continuing presence of the Bb...but the body's continued reaction to the initial presence of Bb. So, the IDSA may have killed off the Bb...but you're still experiencing symptoms...which the IDSA admits as being entirely possible.
And if that is true, then throwing massive loads of antibiotics at it is a complete waste...and may even represent a danger to the patient...beyond the financial one.
Okay...?The cost and benefit of my treatment by an LLMD were priceless.
That's my perception and I'm sticking to it.
We can stop here, then, I think...