What is gone gone gone- for which I am most thankful is what I call the Alzheimer Effect of Lyme Disease.
The scariest aspect for me. I do not think that issue would have been addressed effectively if not for an LLMD. That alone is priceless.
Well, I am really not trying to argue this with you, here, Cobby (and I certainly do NOT know)...but what I am saying is that may only be a perception that you have...and an incorrect one, at that.
Steere wrote a piece (2001, I think) for the NEJM and if I remember right, basically suggested that even untreated cases would eventually resolve. And everyone hooted and snickered about that one.
But look...IF what is going on is really some sort of hyper-reaction of the body to the initial infection...then it seems to me to be within reason that you could have all the symptoms we are talking about and not have an active infectious process going on. Could Bb survive? Sure, I guess, why not? But that doesn't mean that any surviving Bb is capable of driving symptoms.
And the important thing, I think...from a patient perspective...is that IF that is true...then during the phase when the body's response is calming down...
...WHATEVER you do, you name it...is going to LOOK like it is helping. Whatever you do.
That's why we only rely on blinded, controlled studies...so that we can exclude the false perceptions.
Yeah, I had my time with the "brain fog", too. I had a neuro-psych exam done and it was depressing. I was hospitalized for five days during the period when I was undiagnosed. My GI system seemed to have just shut down. I had joint pain, loads of heart trouble...central nervous stuff so bad that I was twice tested for ALS type nerve conduction stuff. (That's fun). My right eye is, I think, probably permanently weaker as a result. Still got the floaters.
It would be quicker and shorter to name what it didn't influence at some point...
...and what I am telling you is that all of that is now better.
Including the heart. I seem to be fine.
Without loads and loads of iv antibiotics. Never even had one iv. I don't really understand what it is that people are talking about.
But like I said...the important thing is to keep an open mind. And although I probably did a lot of dumba** things myself...one thing I think that I have done right is to consider the possibility that my symptoms weren't due to continuing infection.
That is, if I had continued to insist that I was suffering from "chronic Lyme"...I never would have been tested for thyroid hormone deficiency...and I would still be suffering.
This is what I mean when I say that the patient's own perceptions may influence the eventual outcome.
It ain't religion, you know...