Information for people from Scandinavia

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Re: Information for people from Scandinavia

Post by X-member » Wed 4 Sep 2013 15:14

From Norway:
Pasienter og pårørende oppfatter debatten rundt LB som uetisk, uverdig og krenkende. Langtidssyke har blitt statister i en verbal skittkasting der enkelte aktører bare unntaksvis synes engasjert i pasienter og pasienterfaringer. Aktører som faktisk stiller opp for langtidssyke har blitt legitime mobbeoffer, og det blir gjort lite eller ingen ting for å få diskusjonene inn på et fruktbart spor. Vi anbefaler at helsemyndigheter og fagmiljøer konsentrerer seg om å framskaffe kunnskap som kan gi denne gruppen av langtidssyke pasienter et bedre tilbud, før de går til angrep på de som faktisk prøver å gi hjelp.
http://lyme.no/index.php/nyheter/381-kr ... setilsynet

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Re: Information for people from Scandinavia

Post by X-member » Thu 10 Oct 2013 16:00

Från SMI:s rapport som kom idag:
Frågan är dock inte slutgiltigt löst. Långtidsbehandling kan övervägas i vissa fall där den initiala behandlingen inte har gett tillräckligt resultat.
In English:
The question is not finally resolved. Long-term treatment may be considered in some cases where the initial treatment has not yielded sufficient results.
http://smi.se/upload/Publikationer/labo ... 101-28.pdf

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Re: Information for people from Scandinavia

Post by X-member » Tue 12 Nov 2013 16:30

From Norway:

Kronisk borreliose; diagnostikk og behandling - pasientinformasjon

http://nevro.legehandboka.no/sykdommer- ... 41458.html

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Re: Information for people from Scandinavia

Post by X-member » Sat 7 Dec 2013 18:02

From Sweden:

Det finns rätt många artiklar på nätet gällande SBU:s rapport som kom igår (6 dec) och jag kan inte ge er alla.

Men jag ger er en av dom:

Studier om behandling vid borrelia granskade
Publicerat: 2013-12-06


http://www.vetenskaphalsa.se/granskning ... -borrelia/

A quote:
SBU har i sin rapport kommit fram till att det vetenskapliga underlaget är osäkert och att det inte går att säkert säga om det är bättre med en längre antibiotikakur än den som används idag. Enligt SBU:s rapport kan också en längre tids behandling av antibiotika medföra vissa risker.
In English:
SBU has in its report concluded that the scientific evidence is uncertain and it is not possible to say for sure if it is better with a longer course of antibiotics than the one used today. According to the SBU report a long-term treatment of antibiotics can also pose some risks.
Rapporten hittas här (även fulltext):

http://www.sbu.se/sv/Publicerat/Alert/B ... -borrelia/

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Re: Information for people from Scandinavia

Post by X-member » Fri 27 Dec 2013 16:12

And what did SBU say about the treatment studies on late/chronic European borrelia?

http://www.sbu.se/upload/Publikationer/ ... 201305.pdf

A google translated quote:
Antibiotic treatment for borrelia lymphocytoma (Borrelia infection in the earlobe or nipple), borrelia carditis
(inflammation of the heart caused by Borrelia bacteria) and acrodermatitis chronica atrophicans (chronic skin inflammation) is not studied in this report. Only randomized or clinical controlled trials are considered in relation question of the effect of duration of treatment.
The quality of those studies was not good enough to even be looked at. Holy cow!


And what do IDSA say about this?

http://cid.oxfordjournals.org/content/43/9/1089.full
Acrodermatitis chronica atrophicans. Available data indicate that acrodermatitis chronica atrophicans may be treated with a 21-day course of the same antibiotics (doxycycline [B-II], amoxicillin [B-II], and cefuroxime axetil [B-III]) used to treat patients with erythema migrans (see above). A controlled study is warranted to compare oral with parenteral antibiotic therapy for the treatment of acrodermatitis chronica atrophicans.

Edit to add:

But.....

http://www.lymeneteurope.org/forum/view ... f=5&t=5157

As you can see in the topic above, they (the persons who wrote this "article") are rather sure that "those morphologic variants" (of the borrelia bacteria) are not associated with ACA or other signs of a late/chronic borrelia infection.

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Re: Information for people from Scandinavia

Post by X-member » Fri 27 Dec 2013 18:09

Finland:

http://www.huffingtonpost.com/c-m-rubin ... 51241.html
Do you believe that chronic Lyme disease exists or that it is a misnomer for other diseases triggered by Lyme disease?

Markku: This is a difficult question. I think it is clear that some patients have a prolonged course of the disease which may last several months. The most experienced clinicians in Finland think that a continuing Borrelia infection is possible if the patient has not received adequate treatment for the illness, resulting in disseminated infection.

Edit to add:

But I think one of the best answers came from Norway 8-) :

http://www.huffingtonpost.com/c-m-rubin ... hare_ended
What does Chronic Lyme mean to you?

Veronica and Bjorn: If a correct test were given early in this disease, it is quite likely that the patient would get treatment early. Many patients do not get tested early and are therefore forced into a state of Chronic Lyme. So the longer it takes for treatment to start, the more years of treatment will lie ahead.

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Re: Information for people from Scandinavia

Post by X-member » Mon 30 Dec 2013 17:31

Norway.

William Shakespeakers - outbreak (YouTube)

A quote:
My song about lyme disease, and the health systems which is totally neglecting the situation!
https://www.youtube.com/watch?v=sEUCjpOC7a4

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Re: Information for people from Scandinavia

Post by X-member » Thu 2 Jan 2014 2:26

From Sweden.

Gott Nytt Borreliafightår! (Blogg)

http://borreliablogg.wordpress.com/2013 ... iafightar/

Ett citat:
Vissa personer gödslade media med felaktiga teorier om kronisk borrelia .....
Min kommentar:

Jodå, det har allt "gödslats" i många herrans år nu (och detta från BÅDA HÅLL i debatten :evil: )!

Men SMI har nu (tack och lov!!!) löst problemet med VAD kronisk borrelia är för något!

Så här skrev alltså SMI, numera Folkhälsomyndigheten (2013!!!):
Kronisk borreliainfektion som varar längre än 6 månader
förekommer vid obehandlade infektioner som ACA, kronisk artrit eller sen
(kronisk) NB som alla är mycket ovanliga efter tidig antibiotikabehandling.

Edit to add:

Duncan gave us some good information about late Lyme disease (= kronisk borrelia in Sweden, kronisk borreliose in Norway and chronic or late Lyme borreliosis in English) in the post/thread below:

http://www.lymeneteurope.org/forum/view ... 168#p37359

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Re: Information for people from Scandinavia

Post by X-member » Wed 22 Jan 2014 15:24

Från Norge om bland annat Dr Alan B MacDonald.

HEVDER Å HA LØST MS-GÅTEN

http://www.side2.no/helse/article3743753.ece

En till:

Forskere hevder å ha løst MS-gåten

http://www.an.no/nyheter/article7119941.ece

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Re: Information for people from Scandinavia

Post by X-member » Tue 28 Jan 2014 5:15

Norway.

Inte helt ny, men intressant!

Lyme borreliose – en infeksjon med mange ansikter (2011)

http://www.indremedisineren.no/2011/06/ ... -ansikter/

Ett klipp:
Det angis ofte at B.burgdorferi først overføres etter ca 24 timers kontakttid og mer. Nymfestadiet av I.ricinus er viktigste vektor, er liten, antydningsvis 1,5-3 mm, sitter ofte på mindre tydelige steder som knehase, setefure, o.a. og kan overføre bakterien etter en kontakttid ned til 3-4 timer, samtidig som den ofte forlater bittstedet usett. Således er opplysninger om flåttbitt ofte upålitelig og kontakttid lite å fokusere på.

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