Information for people from Scandinavia

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Re: Information for people from Scandinavia

Post by X-member » Sat 8 Feb 2014 17:57

Norway.

- Norsk flåttforskning er utmerket
Britisk forsker mener at hele Europa har lært av Norge.

(In english, google translate:

- Norwegian tick research is excellent
British researcher believes that all of Europe has learned from Norway.
)

http://www.aftenbladet.no/nyheter/lokal ... vZgg_l5PVT

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Re: Information for people from Scandinavia

Post by X-member » Mon 17 Feb 2014 2:45

Detta var sannerligen lite lustigt skrivet:

http://relative-risk.blogspot.se/2014/0 ... again.html

Ett klipp:
In the IDSA review it was determined that the large volume of scientific articles concerning “chronic Lyme borreliosis” were uncontrolled case observations, which do not give convincing evidence of the persistence of viable organisms or effects of prolonged antibiotic treatment.

Chronic (eller late) Lyme borreliosis står nämligen (enligt EUCALB) för det samma som heter late Lyme disease i USA. (In English: Chronic Lyme borreliosis = late Lyme disease.)

Ps! Gällande ACA (dvs, chronic Lyme borreliosis) så har man ju konstaterat att detta beror på borreliabakterier, dvs en aktiv, pågående långvarig borreliainfektion. (se även EUCALB gällande detta). Ds.
Last edited by X-member on Thu 20 Feb 2014 4:20, edited 1 time in total.

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Re: Information for people from Scandinavia

Post by X-member » Mon 17 Feb 2014 3:17

Från EUCALB (gällande ACA):

http://www.eucalb.com/
Acrodermatitis chronica atrophicans (ACA)
Is an unusual progressive fibrosing skin lesion which is probably the most common manifestation of chronic Lyme borreliosis in Europe. It usually occurs in the lower limbs of elderly people, starting with a bluish discolouration of the skin, followed by gradual epidermal atrophy, the skin developing a thin shiny, papery appearance. The condition is due to the effect of continuing active infection. Live spirochaetes have been isolated from skin biopsy specimens of patients with ACA as long as ten years after initial infection.
Dvs, man har definitivt hittat "viable organisms" hos fall med chronic Lyme borreliosis.

In english: Viable organisms have definitely been found in cases with chronic Lyme borreliosis.

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Re: Information for people from Scandinavia

Post by X-member » Thu 20 Feb 2014 3:39

Info om detta hittas även på engelska på andra ställen i forumet.

Ny studie: Borrelia kan smitta när du har sex

http://www.expressen.se/halsa/ny-studie ... u-har-sex/

Min undran, har bara unga personer sex?

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Re: Information for people from Scandinavia

Post by X-member » Thu 20 Feb 2014 4:06

Jag har postat lite info från Norge i ämnet nedan också:

Info about (mainly) B Afzelii

http://www.lymeneteurope.org/forum/view ... =20#p37715

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Re: Information for people from Scandinavia

Post by X-member » Wed 26 Feb 2014 23:48

Norway.

Lars Monsen etter omstridt behandling i Tyskland: - Det virker som om jeg er borrelia-fri
- Eksperimentell medisin, mener norsk borreliaekspert.


http://www.dagbladet.no/2014/02/26/nyhe ... /32043758/

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Re: Information for people from Scandinavia

Post by X-member » Tue 25 Mar 2014 18:16

NorVect - en alternativ motkonferens om borrelia (blog)

http://www.dagensmedicin.se/blogg/mats- ... -borrelia/

A quote (from a comment by this blogger):
Jag har aldrig förnekat att dessa patienter lider, men de har givits felaktiga infektionsdiagnoser av charlataner.
In English (and he mainly talk about "LLMD:s"): "I have never denied that these patients are suffering, but they have been given incorrect infection diagnoses by charlatans."

Ps! This Swedish pediatrician has never, (what I know of) ever had any patient with late or late, complicated borreliosis. Ds.

RitaA
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Re: Information for people from Scandinavia

Post by RitaA » Tue 25 Mar 2014 19:00

X-member wrote:
Ps! This Swedish pediatrician has never, (what I know of) ever had any patient with late or late, complicated borreliosis. Ds.
The Swedish pediatrician who wrote the blog entry may not have seen any patients with late or late, complicated borreliosis, however Dr. Eikeland certainly has, and she will be attending the conference.

Here's a rough translation of the last two paragraphs using Google Translate:
On the other hand, we have a cat among the ermines, neurologist Randi Eikeland ... Randi has more than other experts in Norway tried to go into dialogue with the patient activists who consider themselves to be suffering from active infections with tick-borne microbes.

I think Randi Eikeland is brave, but I wonder if the tactics she has chosen will work. The conference is organized by patients who are dissatisfied with the public health care can not detect the infections they consider themselves to be suffering from ( as they probably do not have any active infections ), and I am hesitant about Randi as a lone sane voice on NorVect will be able to convince them. Nor is she upset some of the other speakers in their extreme views. It will be as if a representative of NASA would stand as a speaker at a conference on astrology.
I think Dr. Eikeland is brave too, and I respect her willingness to at least listen to patients and doctors who may not share her professional views.

Edited to add:

To read about Randi Eikeland's work and published articles:

"European LNB - Long-term follow-up (Norway)"

http://www.lymeneteurope.org/forum/view ... f=7&t=3980

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Re: Information for people from Scandinavia

Post by X-member » Tue 25 Mar 2014 19:33

Rita wrote:
The Swedish pediatrician who wrote the blog entry may not have seen any patients with late or late, complicated borreliosis, however Dr. Eikeland certainly has...
Neuroborreliosis are in most cases (95%) only stage 2 (only 5% are late/stage 3). And how many patients with one or more other infections and/or immune deficiencies (= complicated borreliosis) has Dr Eikeland treated?

And how about cases with arthritis or ACA?

RitaA
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Re: Information for people from Scandinavia

Post by RitaA » Tue 25 Mar 2014 22:15

X-member wrote:Rita wrote:
The Swedish pediatrician who wrote the blog entry may not have seen any patients with late or late, complicated borreliosis, however Dr. Eikeland certainly has...
Neuroborreliosis are in most cases (95%) only stage 2 (only 5% are late/stage 3). And how many patients with one or more other infections and/or immune deficiencies (= complicated borreliosis) has Dr Eikeland treated?

And how about cases with arthritis or ACA?
Those are good questions, and I'm not sure that anyone here has the answers. Since Dr. Eikeland is a neurologist, she is much more likely to see and treat patients with neurological problems as opposed to Lyme arthritis or ACA -- never mind people with co-infections and/or immune deficiencies.

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