Worldwide Lyme Protest (on facebook)

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Tue 25 Dec 2012 15:38


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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Wed 26 Dec 2012 19:16


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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Fri 5 Apr 2013 16:58

Worldwide Lyme Protest - Russia

http://www.facebook.com/borrelioz

Camp Other
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Re: Worldwide Lyme Protest (on facebook)

Post by Camp Other » Fri 5 Apr 2013 18:22

I thought the person who was organizing this worldwide protest backed out? Or am I wrong?

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Tue 9 Apr 2013 21:28

"BORRELIAUPPRORET

WORLDWIDE LYME PROTEST SWEDEN" (homepage)

http://www.borreliaupproret.n.nu/

A google translated quote:
On October 24, 2012 "borreliaupproret" started because of the thousands of seriously ill do not get treatment for Lyme disease and "coinfections" (other infections that often occur together with Lyme disease) in Sweden. The protest soon expanded to the neighboring Nordic countries, and then we had with us countries worldwide ...

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Sun 21 Apr 2013 14:06

"It’s Our Turn Now: World-Wide Lyme Protest"

http://www.publichealthalert.org/Articl ... Hilton.pdf

A quote:
by Lisa Hilton

Worldwide Protest Organizer Charlotte Therese Björnström from Sweden, recalls, "I started the Worldwide Lyme
Protest after struggling hard for over 25 years to get help. I was stubbornly denied any treatment for Chronic Lyme and several co-infections. When I realized how widespread the same "non-treatment situation" was, and for what reasons treatment was being refused, and how inaccurate the diagnostic tests that are available are, I thought it's about time to do something BIG to change this problem globally. It’s time to end the suffering of millions of people with these illnesses and other diseases that originate from tick-borne pathogens.

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Wed 1 May 2013 17:24

From Norway:

Lars Monsen skal holde appell under borreliademonstrasjon utenfor Stortinget
Vil ha effektiv og rettferdig utredning.


http://www.dagbladet.no/2013/05/01/nyhe ... /26932277/
- Tiden er inne for å finne sammen — for å møte denne forferdelige sykdommen, og den vanskelige politikken som omkranser den. Vi må stå sammen og støtte opp om den verdensomspennende kampen inntil vi og våre leger får medisinsk frihet, politisk rettferdighet og våre liv tilbake, sier Fisher Smith til arrangørene av demonstrasjonen.

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Mon 6 May 2013 16:36

A quote from the petition posted in the Swedish Lyme Protest:

https://www.facebook.com/Borreliaupproret?fref=ts
...yet we have nowhere to turn since our governments and medical communities continue to deny the severity of this problem or that chronic/late-stage Lyme disease even exists.

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Thu 9 May 2013 16:10

http://forum.borrelia-tbe.se/
INFORMATION OM VAD SOM HÄNDER UNDER BORRELIAMÅNADEN MAJ 2013 RUNT OM I VÄRLDEN! World Wide Lyme day protest 10-11 maj 2013

----------------------------------------------------------------------------------------
Denna petition har skickats till de ansvariga i hela världen nu:

MAY 2013

TO:
International: World Health Organization (WHO)
Argentina: Ministry of Health (MSAL)
Australia: National Health & Medical Research Council
Austria: Ministry of Labor, Health and Social Affairs
Belgium: Scientific Institute of Public Health
Brazil: Ministry of Public Health (Ministério da Saúde), Unified Health System (SUS), FUNASA
Canada: Health Canada, BC Centre for Disease Control
Czechoslovakia: Ministry of Health (Ministerstvo zdravotnictví České republiky)
Croatia: Ministry of Health (Ministarstvo zdravlja)
Denmark and the Faroe Islands: National Institute of Public Health, Statens Institut
Finland: Ministry of Social Affairs and Health
France: Ministry of Health, French Institute for Public Health Surveillance
Germany: Federal Ministry of Health, Robert Koch Institute
Greece: Ministry for Health and Social Solidarity (Υπουργείο Υγείας και Κοινωνικής Αλληλεγγύης)
Hungary: Ministry of Health, National Healthcare Fund
Iceland: Directorate of Health
Ireland: Department of Health (An Roinn Sláinte)
Italy: Ministry of Health (Ministero della Salute)
Netherlands: National Institute of Public Health and the Environment
Norway: Ministry of Health and Care Services
New Zealand: Ministry of Health (Manatū Hauora in Māori)
Poland: Ministry of Health of the Republic of Poland (Ministerstwo Zdrowia Rzeczypospolitej Polskiej)
Romania: Ministry of Health (Ministerul Sănătăţii)
Russia: Ministry of Health of the Russian Federation (Миниздрав России Minzdrav Rossii)
South Africa: Department of Health
Spain: Interterritorial Council of the Spanish National Health Service (Consejo Interterritorial del Servicio Nacional de Salud de España, CISNS)
Sweden: Ministry of Health and Social Affairs (Socialdepartementet)
Switzerland: Federal Office of Public Health
United Kingdom: National Health Service, Porton Down
United States: Centers for Disease Control, National Institutes of Health, US Food and Drug Administration


FROM: People with Lyme disease throughout the world

May 2013 marks International Lyme Disease Month. This May, more Lyme disease patient advocates than ever before are taking our message as far and wide as possible globally, and this petition is one segment of our multi-pronged approach to seek justice and fair treatment for all who are afflicted and forced to continue to needlessly suffer.

Many states within the United States (US) and nearly thirty countries (please see above list) will be participating in various forms of protest this May. Despite the fact that Lyme disease is the fastest growing infectious disease in many parts of the world -- reaching epidemic proportions in the US, with cases by far outnumbering those of AIDS, West Nile virus, swine and avian flu combined -- the disease, especially in its late-stage or chronic form, continues to be downplayed, overlooked and dismissed by governments and as a result, by medical communities worldwide. Globally, Lyme patients are being ignored, misdiagnosed, abused and denied treatment for Lyme disease as well as other vector-borne illnesses such as babesia, erlichisois, ricksettia, mycoplasma and bartonella, and many other related infections and disease outcomes.

Therefore, we urgently demand that our respective governments:

ADMIT that chronic Lyme disease is real, can be very serious and is potentially fatal. There exists an overwhelming body of evidence-based research that supports these facts. Despite the well known fact that in far too many cases of this disease, early diagnosis and treatment quite tragically do not take place, due in large part to the lack of training about Lyme disease within the medical community. Patients go undiagnosed and/or misdiagnosed for years, decades, and even lifetimes, never receiving the proper diagnosis and treatment in the first place that could prevent tremendous pain, suffering, stigmatization, ostracizing and agony. The suicide rate for this agonizing disease is tragically and unacceptably high.

ACKNOWLEDGE that Lyme disease and related stealth infections are far more prevalent than is currently being admitted/reported in most countries. It is ludicrous that our governments and, in turn, our medical communities, continue to perpetuate the myth of Lyme disease being "hard to catch and easy to cure," blatantly ignoring the fact that the majority of us do not receive proper diagnosis and treatment in the disease's acute stage, when there is more of a chance at recovery, and therefore end up with devastatingly severe forms of the disease that are life-ruining, and yet we have nowhere to turn since our governments and medical communities continue to deny the severity of this problem or that chronic/late-stage Lyme disease even exists. Much more research is needed for these late-stage cases, and instead, our pleas are met with denial that we are now sick from not being diagnosed and treated in the first place.

DESIGNATE specific funding for more accurate testing, more effective treatments, and better, up-to-date training of medical personnel to combat this 21st century plague. We also demand more independent, unbiased research to be funded by the main medical arms of our governments, such as the National Institutes of Health (NIH) in the US. It is now highly obvious that we are in desperate need of a complete paradigm shift regarding how these stealth infections are being transmitted, how they are being researched (or not), and who has been receiving the majority of the research funding.

ELIMINATE, once and for all, the professional 501 (c) 3 nonprofit association, Infectious Diseases Society of America (IDSA) from the equation entirely. Why does the US Centers for Disease Control (CDC) repeatedly continue to use the IDSA as its main source for establishing Lyme disease research, diagnostic and treatment guidelines, in light of the fact that many members of the IDSA's Lyme disease committee have obvious conflicts of interest and it is well known that this committee is primarily dedicated to one goal: Ensuring that medical communities all over the world remain incorrectly informed about the seriousness of this disease and that patients continue to suffer greatly. This is severe negligence on the part of the CDC, especially considering that Senator Richard Blumenthal's (D-CT) multi-year anti-trust investigation into the IDSA Lyme disease guidelines committee found the committee biased and the guidelines flawed. A great change needs to happen, as the picture of the modern medical establishment that the IDSA and it’s brethren have painted is one of an appalling misuse of power, greed and a complete lack of care for the quality of life of our nation’s sick and disabled.

You may not be aware that chronic Lyme disease, initially caused by the bacterium dubbed Borrelia burgdorferi, is more accurately described as a mix of potentially very serious and even deadly stealth infectious agents – bacterial, viral, fungal, mycoplasmal, etc. -- relentlessly attacking and breaking down one's immune system. In this sense, chronic Lyme disease is more akin to HIV-AIDS, is best described as such (and not an acute-only, single pathogen infection), and is now being referred to in advanced medical research and clinical environs as multiple chronic infectious disease syndrome (MCIDS). It is far too common for people with chronic Lyme disease, due to absolutely no fault of their own, to lose their careers, income source, their spouses, their support systems, their medical insurance, their entire lives -- and most importantly, their dignity.

In consideration of all of the above, we demand that you begin to take seriously Lyme disease and its myriad, life-destroying and life-threatening complexities. If you are now willing to right this unconscionable wrong, then we are more than happy to work with you in any capacity necessary to help to make this desperately needed action take place. It is the humane thing to do. It is a travesty beyond description that such a debilitating, life-destroying disease has been allowed to be overlooked, passed over, neglected and ignored for this long. Within our global community, which is growing exponentially by the minute, there is a plethora of highly knowledgeable attorneys, healthcare providers, scientists, advocates, nonprofit leaders, and others who are eager to take on this task with you.

Please bring attention to this issue and let the truth about Lyme Disease be known. It’s time that those in power realize that the whole world is watching!

Thank you for your immediate attention to this gravely serious matter

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Re: Worldwide Lyme Protest (on facebook)

Post by X-member » Thu 9 May 2013 20:05

UNDER OUR SKIN - SEND US FOOTAGE

http://www.underourskin.com/send-us-footage

A quote:
WORLDWIDE LYME PROTEST VIDEO CONTEST

We are officially underway with an update to our award-winning documentary UNDER OUR SKIN, and we need your help!

In our continued effort to illuminate issues that Lyme sufferers face worldwide, we are eager to invite you to join us by sending in your own May 2013 Lyme protest footage and contributing to our update!

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