"Chronic Lyme is post-sepsis syndrome" ?

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sun 8 Nov 2015 19:25

More from the Norwegian "supporter":
Vennligst ikke donere til noen av Lyme ideelle organisasjoner som nekter å fortelle deg sannheten om det - som er at kronisk nevrologisk sykdom var forårsaket av sopp toksin, LYMErix. Det betyr ILADS ikke vet hva de snakker om, og det er derfor de ikke kan kurere noen.
Translation with google translate (and partly by me):
Please do not donate to any of Lyme nonprofit organizations that refuse to tell you the truth about it - which is that chronic neurological disease is caused by fungal toxin, LYMErix. That means ILADS not know what they are talking about, and that is why they can not cure anyone.
Edit to add:

If someone wonder which treatment they (this US woman and her Norwegian "supporter") suggest, check the first post in this thread:

http://www.lymeneteurope.org/forum/view ... =11&t=5983

A quote:
Rituximab

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sun 8 Nov 2015 19:44

Some Swedish information about Rituximab (Mabthera):

Mabthera®

http://www.fass.se/LIF/product?nplId=19980602000029

A translated quote:
Do not take Mabthera if*:

- you currently have a severe active infection.
- you have an impaired immune system.
* They give some more examples.

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sun 8 Nov 2015 22:51

I now tried to inform the Norwegian "supporter" (on facebook) that chronic (Lyme) neuroborreliosis stands for an active, late neuroborreliosis in Sweden and Norway. He blocked me.

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Mon 9 Nov 2015 1:02

Now all the physicians over the world that use the original definition of chronic Lyme borreliosis, can defend themselves, don't you agree?

Martian has posted it in the thread/post below:

Chronic Lyme Article from 1987...?

http://www.lymeneteurope.org/forum/view ... 721#p41710

A quote:
Note that the term "chronic Lyme" has two meanings:

1. a synonym for "late Lyme", which has been used since the 1980s.

2. a name for symptoms caused by a persistent Borrelia infection, which persists despite supposedly adequate antibiotic treatments. Even years of antibiotics supposedly fail to eradicate the infection in thousands of patients.

Meaning 2 seems to be invented by the "llmds" and Lyme activists/patients somewhere during the 1990s. That's when the Babylonian confusion of tongues started regarding "chronic Lyme disease".

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Mon 9 Nov 2015 5:55

I removed a post, since I found an old thread in this forum that actually is about the theory. So I don't need to post any more quotes from facebook any longer (I think).

OspA causes immune suppression, Part I

http://www.lymeneteurope.org/forum/view ... f=6&t=1909

Edit to add:

I think something about this also is mentioned in the thread below:

Application to IDSA's new "guidelines" panel

http://www.lymeneteurope.org/forum/view ... f=7&t=1908

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Mon 9 Nov 2015 16:16

I would like to add to this thread, that "symptoms after treatment" can have many causes.

And I (and all the physicians that use the original definition of chronic Lyme borreliosis) agree with ILADS on this (a quote from the first post):
...Chronic Lyme is about "spirochetes...

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sat 28 Nov 2015 9:02

From the first post in this thread:
The first such study on this came out in October 19th, 2011 (67% cure rate). The second one came out in July 2015 (64% cure rate).
This theory (and those numbers) have now been discussed in Norway.

Tilbyr privat ME-behandling med kreftmedisin – forskere reagerer

http://www.dagensmedisin.no/artikler/20 ... -reagerer/

A quote (from a comment):
Er teorien at denne OspA-vaksinen forårsaker kronisk borreliose? Henger ikke helt med.. For øvrig en del uriktigheter: Det er ikke 67 og 64 % prosent som ble kurert, det er bare en tredjedel som ble tilnærmet helt friske eller helt friske. Resten hadde moderat respons. Det er også usikkert om EBV-viruset har noe relevans i det hele tatt, annet enn å trigge sykdommen hos en del.
Translation (with google translate and partly by me):
Is the theory that the OspA-vaccine causes late borreliosis? Do not really understand.. Otherwise partly incorrect: There was not 67 and 64% percent that was cured, it was only a third that was almost completely healthy or completely healthy. The rest had moderate response. It is also uncertain whether EBV-virus has any relevance at all, other than to trigger the disease in some cases.

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sat 27 Feb 2016 22:27

Maybe this also belong in this thread?

Evidence assessments and guideline recommendations in Lyme disease: the clinical management of known tick bites, erythema migrans rashes and persistent disease

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4196523/

A quote:
Other methods of immunomodulation may prove useful in the future, especially if it can be established that immune dysregulation is the specific mechanism underlying an individual’s persistent disease. However, unless an ongoing infection can be definitively ruled out, caution is required because immunomodulation could cause an occult infection to flare.

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Fri 29 Jul 2016 20:51

From the first post in this thread:
Since 1999, ActionLyme has been proposing a model of Chronic Lyme based on the fact that the OspA vaccines were causing it too. And at the FDA hearing, Jan 2001, I mentioned that OspA was known to induce the immunosuppressive cytokine IL-10 ....
Professor Dag Nyman (Åland/Finland), a translated quote regarding borrelia tests:
Antibodies against OspA are rare.
http://www.bimelix.ax/sv/provtagningsan ... reliapaket

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Re: "Chronic Lyme is post-sepsis syndrome" ?

Post by X-member » Sun 5 Feb 2017 17:45

Maybe this also belong in this thread?

Fatal outcome of tick-borne encephalitis in two patients with rheumatic disease treated with rituximab

https://academic.oup.com/rheumatology/a ... tis-in-two

A quote:
Rituximab (RTX) is a chimeric monoclonal antibody. Its immunomodulatory effect is attributable to a rapid and sustained B-cell depletion, lasting up to 12 months [3]. As a consequence, antibody response to vaccination and infection is impaired [4].

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