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List of Lyme patient societies around the world (and contact information)

Posted: Fri 27 Oct 2017 15:25
by Aspie Lymie
Dear all,

I'm a member of a Lyme patient society, and we are drawing up a list of Lyme patient societies around the world along with contact information. The idea is sharing ideas to organize events and defend our common cause on a global scale, not just locally. Additionally, we want to know what events other societies organize, and we want to share with them what we do.

Regular researches are difficult because one has to search terms in different languages (e.g. "Borreliose Gesellschaft" to lookup German societies). It's a lot of work, and I'd like to know if you could tell me which Lyme patient societies you know already, plus if you have their contact info at hand, that would save me precious time. I know many of you here come from many different countries so I'm sure you can play your part...

Thank you so much ! :)

Re: List of Lyme patient societies around the world (and contact information)

Posted: Fri 27 Oct 2017 15:52
by Martian
This is an old LNE topic from 2008 that may contain some useful info about this:

LNE topic: Lyme disease foundations and associations in Europe (4 Feb 2008)

Some of the info and links will be outdated now.

Re: List of Lyme patient societies around the world (and contact information)

Posted: Fri 27 Oct 2017 16:18
by Aspie Lymie
Oh, great! Thank you so much ;)