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Re: Anyone have CHRONIC gastritis where you can't eat ANYTHING?

Posted: Sun 14 Jun 2009 8:36
by bigdreams87
Nelly have you tried Alinia?

Fin, Alinia has very little side effects. Do you think the fact that I am able to eat while taking it is just a coincidence? I also feel better cognitively and have more energy.

Re: Anyone have CHRONIC gastritis where you can't eat ANYTHING?

Posted: Sun 14 Jun 2009 14:29
by NellyP
Fin24 wrote: there are many reasons why anything we take may help without it being for the purpose intended
Yep! I know that, I am always aware that any conclusions I appear to make re what is ailing me have to be working hypotheses nothing more, nothing less. It's just that I have to make treatment decisions so I have to decide what appears most likely to me at any given point in time.
for example the minocycline I take may not be killing Bb but may be having antiinflammatory effects and frankly as long as it helps I dont care BUT I can never state without impugnity that I am killing spirochetes
Yeah, yeah, that's what they say! Not sure I believe that one.
as for the antiprotozoals they too have various effects making you feel better without actually killing anything or without you having anything to kill. Im not saying you dont still have infection, just that there are many reasons to explain your improvement
see above
do you take all those meds at once, sequentially or another way??? theyre a combo package that sounds very risky, especially to liver and kidneys!
No I don't them all at once, I'm nuts but not THAT nuts :)!
why so many "azoles"??? they have very similar if not identical effect
Metronidazole and tinidazole are very similar, flubendazole and albendazole are very similar but not that similar to metro and tini.
--Id think after all those, and an extended time period if you werent being reinfected; well then I truly still cant imagine being still infected--many of the drugs you list actually hit the cyst forms of parasites too.
You can imagine all you like, I, myself have no certainties as to what has been killed and what hasn't, all I know that as soon as I get OFF one of my azole, all hell breaks loose.
From your exposure history, you arent "typical" and that may be why you have/had so many parasites--and that cant be compared to the "average" person.
Quite! I have been exposed to stacks of things in various places around the world, I had an extremely "at risk" few years starting in adolescence lasting right until my demise when I was 29.

The only exception being toxoplasmosis as, as I said nearly 90% of the French population has been infected with toxoplasma gondii, so in that respect I am VERY typical of your average French person
toxo rarely needs treating

That's what used to be believed (and what many still think) but I am starting to have strong doubts. I had a kind of toxo flare, as was shown in my serological profile in 1999 (I was already very ill with whatever cocktail), some years before 1999, I had had a toxo serology which showed "resolved infection", I suspect there is a lot more than they say with toxo and immune suppression. I think many things besides AIDS can cause enough immune suppression to allow for things like toxo to flare
but if it does, you dont seem to be on the drugs known to get at it quite well-have you tried
Daraprim-pyrimethamine
sulfadiazine plus Daraprim
cleocin--pyri plus clindamycin
True, I am kind of tired of shaking my ID doc for new tests and new treatments. I have been thinking of trying more toxo-specific drugs, but I haven't yet managed to get together a convincing case for myself or for my ID doc yet. Although I know I should etc...
atoquavone must be used WITH the pyri or sulfa to be effective
success with HIV patients occur in 3-6 weeks and those folks are immune compromised


To be effective against what protozoal infection?
even hard to treat protozoals are fairly easy to diagnose and identify
Are you sure?
some do cause lesions in the liver--have you had MRI and/or ultrasound to make sure thats not a source of hidden re-infection
See above about total fedupness with putting together a case as to why I should have this or that test done. I agree with you and I even suspect that I do have foci of infections in hard to get to places (like the liver, the brain and other places no doubt). So yes, I should have an MRI of the liver done, but for the time being I am not.
I wish you luck with that
Thanks

Nelly

Re: Anyone have CHRONIC gastritis where you can't eat ANYTHING?

Posted: Sun 14 Jun 2009 14:32
by NellyP
bigdreams87 wrote:Nelly have you tried Alinia?
No, I wanted to, even asked for it last time I saw my ID specialist, he said it was not available in France. Definitely something I want to try.

Nelly