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Cannabidiol - safety in infectious disease

Posted: Thu 19 Nov 2015 15:07
by tomasz
Hello.

I've had neurological lyme disease. Maybe bacteria is still there, I don't know.

I've been treated for many months with oral and IV antibiotics (mor than a year).

I've discontinued treatment with antibiotics, it don't work anymore.

My biggest problem now is an epilepsy, simple partial seizures, they do some mess in my "thought process". I have no short term memory, they influence my mood etc.

My seizures do not respond well to AEDs.

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I'd like to start taking CANNABIDIOL OIL (made from hemp), it's a part of marijuana and hemp plants.


It's very effective for epilepsy and many other diseases.


But I have some concerns about using CBD, it can modulate immune system (supression) , and I still don't know if Borrelia Burgdoreri is still present in my body.

Have anybody tried using medical marijuana or CBD oil/paste?

Re: Cannabidiol - safety in infectious disease

Posted: Sat 21 Nov 2015 6:37
by Bogey123
CBD oil is good for paim and muscle ache. Might make you hyper as it is made fro, a sativa hemp plant.Definetly worth a try

Re: Cannabidiol - safety in infectious disease

Posted: Sun 22 Nov 2015 15:34
by tomasz
Thank you for your respone.

I'm pretty sure it can treat my seizures, but I still worry about "waking up" spirochetes.

Re: Cannabidiol - safety in infectious disease

Posted: Sun 22 Nov 2015 15:49
by dlf
Hi tomasz,

I have not tried cannabidiol myself. However, I am able point you to Dr. Murakami's websites and tell you that he will talk personally with patients, including any who are considering whether this is something that might be helpful. He is funding a study being done by Dr. Eva Sapi through New Haven researching cannabidiol effects on Borrelia burgdorferi in vitro, which (so far as I have seen) has not been published. He may be able to answer your questions.

http://www.murakamicentreforlyme.org/

https://www.facebook.com/Dr-E-Murakami- ... 162213386/

Re: Cannabidiol - safety in infectious disease

Posted: Mon 15 Feb 2016 2:51
by paulieinct
Here in Connecticut, medical marijuana is legal. I am over 7 years into antibiotic treatment for Lyme and coinfections. I went on CBD oil for 2 months to relieve unrelenting body-wide pain and stiffness. I described my pain as like a combination of Parkinson's, MS, and ALS. The CBD oil, at what is considered a high dose, cut my pain in half. It is expensive, about $500/month.

Two weeks ago, I let my CBD oil Rx run out and waited to see how much pain returned. Interestingly, there was no change in my pain level, which is now mild to moderate. I am on the same antibiotic protocol as when I started the medical marijuana.

Either the CBD oil had a lasting beneficial effect on my condition, or I am coming down from a huge Bartonella herx. Bart was a missed infection in my case, and I only started treating for it a year ago with Rifampin.

The CBD oil I used had no THC and no psychoactive effects. However, I also tried THC vapes a few times. I do not like the marijuana "high", consequently I cannot say if THC is beneficial.

Re: Cannabidiol - safety in infectious disease

Posted: Tue 3 May 2016 15:27
by lamelyme
I started taking Cannabidiol Oil some weeks ago.. The most profound effect I have noticed is that my bowel problems have improved. No probiotics where successful in treating it. Now I only have few diarrhoeas and flatulences. Before that it was very different. That on its own is very nice. Also the pain seems to have gone away a bit. Anyway, there is also research out there that supports this positive effect on inflammatory bowel diseases. I cannot tell if my immune system is suppressed in a negative way.
paulieinct wrote:The CBD oil, at what is considered a high dose, cut my pain in half. It is expensive, about $500/month.
Interesting.. How much CBD is that? What was the strength of the oil (% of CBD)? How many drops did you take? Did you take it orally or vaporize it?

Re: Cannabidiol - safety in infectious disease

Posted: Wed 18 May 2016 5:48
by paulieinct
lamelyme wrote:I started taking Cannabidiol Oil some weeks ago.. The most profound effect I have noticed is that my bowel problems have improved. No probiotics where successful in treating it. Now I only have few diarrhoeas and flatulences. Before that it was very different. That on its own is very nice. Also the pain seems to have gone away a bit. Anyway, there is also research out there that supports this positive effect on inflammatory bowel diseases. I cannot tell if my immune system is suppressed in a negative way.
paulieinct wrote:The CBD oil, at what is considered a high dose, cut my pain in half. It is expensive, about $500/month.
Interesting.. How much CBD is that? What was the strength of the oil (% of CBD)? How many drops did you take? Did you take it orally or vaporize it?
I first tried the CBD oil in syringes, but controlling the amount dispensed was too difficult and it tasted like crap. So I went to capsules containing the CBD oil. Took one two or three times a day. The product was Theraplant CBD40.

I also tried THC vapes a few times. I don't like the marijuana high, but I would imagine that patients who like the high would derive benefit from it for pain and sleep.