Turn the Corner Foundation's dubious grants

General or non-medical topics with information and discussion related to Lyme disease and other tick-borne diseases.
Martian
Posts: 1940
Joined: Thu 26 Jul 2007 18:29
Location: Friesland, the Netherlands

Turn the Corner Foundation's dubious grants

Postby Martian » Fri 12 Nov 2010 3:54

Now I am also getting sceptical of this "Turn the Corner" foundation...

This started by getting doubts about Eva Sapi's studies, because of the study objects, outcomes, etc., and last but not least, the way it is published (some of it in the Townsend Letter, July 2010).

Just a few hours ago I learned that those studies were funded with grants from the Turn the Corner Foundation. I looked for what other studies they funded and I think it's quite shocking:
http://www.turnthecorner.org/content/in ... ty-ilads-0

Look at that page "2010 Grants and Initiatives". You will find there:

2010 Grants and Initiatives

International Lyme and Associated Diseases Society (ILADS)

Turn the Corner made a grant to ILADS for the world renown Physicians Training Program (PTP). Founded and exclusively funded by TTC, the PTP continues to foster excellence in care for Lyme disease and tick-borne disease patients by providing medical practitioners the opportunity to study with Lyme-literate healthcare professionals. In 2010 TTC proudly trained our 100th program graduate. Thousands of patients have been properly diagnosed and properly treated thanks to our groundbreaking signature program.


World renown?! ROFL! :lol:


Turn the Corner made a grant to Steven Phillips, M.D. to study an innovative treatment for Lyme and tick-borne diseases – rife technology. This study will be examining the effects on human cells of exposure to the types of radiofrequencies used in a particular rife machine. Extensive research has already been conducted on the effects on human cells by exposure to the frequencies used for cell phones, but this type of research has not been done for the radiofrequencies used for rife machines. This study will examine lymphocytes from patients with chronic Lyme disease who have not used a rife machine, patients with chronic Lyme disease who have been using a rife machine, and healthy controls. The lymphocytes will be examined for DNA damage by both the COMET assay and micronucleus test.

In this way, it may be possible to quantitate and compare the risk, or lack thereof, of rife
machine radiofrequency exposure.


Note: Steven Phillips is currently an ILADS Director.

To study RIFE!? LOL!! :bonk:
Lymeland WTF moment of the month! :woohoo:

Oh please, and what will be the outcome that that study? Rife is safe and effective? :roll:


But now seriously, if there is ONE THING these folks should study, it's longer term treatments. Let them try to provide solid evidence that what they are doing (longterm ABX) for years now is save and effective.

BTW: we are STILL waiting for the new ILADS guidelines. Maybe they are more interested in selling stuff?

Martian
Posts: 1940
Joined: Thu 26 Jul 2007 18:29
Location: Friesland, the Netherlands

Re: Turn the Corner Foundation's dubious grants

Postby Martian » Fri 12 Nov 2010 4:31

Always interesting to look who is on board:

Source: http://www.turnthecorner.org/content/events-and-photos

MEDICAL ADVISORY BOARD

Gregory Paul Bach, DO, FAAIM
Sabra M. Bellowin, MD
Kenneth A. Bock, MD
Stephen J. Bock, MD
Joseph J. Burrascano JR, MD
Robert C. Bransfield, MD, FAPA
Daniel Cameron, MD, MPH
Ingeborg S. Dziedzic, MD
Andrea Gaito, MD
Nick S. Harris, PhD, ABMCI
Richard Horowitz, MD
Joseph G. Jemsek, MD, FACP
Charles Ray Jones, MD
Alan B. MacDonald, MD
Jeffrey A. Morrison, MD, CNS
Steven E. Phillips, MD
Bernard D. Raxlen, MD
Virginia T. Sherr, MD
Gerald T. Simons, PA-C
Harold A. Smith, MD


Many of the usual suspects, but in particular having Gregory Paul Bach on board is a real asset and very good for one's reputation (NOT). Also note that Nick S. Harris is CEO of Igenex. And of course there are multiple ILADS/"LLMD" folks on board.

You see it again and again, all these parties (like Igenex, ILADS, CALDA, LDA, and thus also TCF) are interwoven with each other, and supporting, funding and recommending each other. These people are not independent, so how can one rely on the following study that is also funded by TurntheCorner:

From "2010 Grants and Initiatives":
Turn the Corner made a grant to Cheryl Koopman. Ph.D. at Stamford Univeristy to continue the “Multi-Method Examination of Diverse Manifestations of Lyme Disease”
Dr. Koopman and her Stanford University team seek to identify diverse manifestations of Lyme disease to help explain the complexity of this illness. They intend to use clinical and laboratory findings of Lyme disease patients to show how conclusions from prior studies may not adequately generalize to the typical Lyme disease patient population.

There are two main goals: 1) To identify patterns of symptoms that describe different groups of Lyme disease patients as seen in clinical practice; and 2) to establish a case-controlled definition of chronic Lyme disease.

For the first phase of the project, they obtained data from a large private practice in California that specializes in treating tick-borne illnesses. Over 1,000 medical records were reviewed and data recorded include: demographics, recollection of tick bite and bulls-eye rash, length of time since onset of symptoms to initial visit, co-morbid infections and illnesses, test results, and prior/current medication use. The team is excited about the results of this first phase of the research, which will be revealed as soon as they publish the results.

In the second phase of the study now, Dr. Koopman and her team are recruiting persons diagnosed with Lyme disease by California Bay Area physicians and matching them to a group of healthy controls to compare their test assays, symptoms, and quality of life indices.

The sensitivity and specificity of IGeneX Western Blots, Mardex Western Blots, PCR and ELISA will be compared to each other for their ability to detect chronic Lyme disease. They will examine how these tests and indices are related to the symptom clusters found in the first phase of the study. This will help to establish a preliminary set of case-controlled criteria to characterize persons with chronic Lyme disease on alternative test assays and to further understand the diverse manifestations of this illness.

This research study is being conducted at Stanford University. The research team consists of the following: Cheryl Koopman, PhD, Principal Investigator; Tyson Holmes, PhD, Biostatistician; Yvonne Lin, PA-C, Project Director; Lila Castillo, MA, Project Coordinator; and Alexandra Aylward, Jill Whisnant, and Casey Brodhead, Research Coordinators. The expert panel is comprised of Daniel Cameron, MD; Christine Green, MD; and Raphael Stricker, MD. This project’s Scientific and Community Advisory Board includes physicians, researchers, and advocates.


Igenex's tests, what a surprise. I guess the study will show wonderful sensitivity and specificity.

BTW: I also wonder if any of all these studies will be published in a medical journal (peer-reviewed and with impact).


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