PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

General or non-medical topics with information and discussion related to Lyme disease and other tick-borne diseases.
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Joanne60
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Location: Guildford Surrey UK

PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Joanne60 » Fri 11 Oct 2013 17:41

PUBLIC HEALTH ENGLAND (PHE) held a meeting with doctors, microbiologists, patients and patient support groups on Wednesday 9th October to discuss Lyme Disease

It was a historic occasion, never having happened before in the UK and was a good start of dialogues which included patients.

Dr Tim Brooks talked about testing which is now being undertaken at Rare and Imported Pathogens Laboratory at Porton Down and it was interesting to hear Dr Brooks and his team discuss various tests and future possibilities for testing.

Stella Huyshe- Shires chair of Lyme disease action presented a very direct picture from the perspective of patients, the state of the politics and science in relation to Lyme Disease, no doubt further information will be available on http://www.lymediseaseaction.org.uk/

Dr Matthew Dryden discussed a Lyme Disease clinic recently opened by NHS at Winchester

here are the presentations
https://www.phe-events.org.uk/HPA/media ... slides.pdf

Lorima
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Joined: Mon 29 Oct 2007 20:47

Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Lorima » Fri 11 Oct 2013 21:43

Thanks Joanne, for posting this. I was aware of the meeting but didn't have the slides.
I just went through them all.
"I have to understand the world, you see."
Richard Feynman

Joanne60
Posts: 110
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Location: Guildford Surrey UK

Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Joanne60 » Tue 15 Oct 2013 23:02

Conference wrap up and invitation to comment
https://publichealthmatters.blog.gov.uk ... e-disease/

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inmacdonald
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Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by inmacdonald » Wed 16 Oct 2013 17:26

The UK appears to have embarked on a more sophisticated program of TBD science and awaeness and
accumulation of case reports which were unheard of during the Oppressive Reign of Dr Susan O'Connell D.Phil Micro.
and her colleague Dr. Gray in Ireland [ where according to Dr Gray- Lyme borreliosis human cases do not exist
in Ireland}
some Progress in the UK,
but for therapy and more Expert diagnosis: Uk residents should continune to book airline tickets to the
Federal Republic of Germany.
REspectfully,

Alan B. MacDonald, MD FCAP , FASCP
Oct 16, 2013

Nicola S
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Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Nicola S » Mon 21 Oct 2013 14:23

I just updated my blog with a write up of the PHE meeting, including detailed notes that I took and my thoughts. It was a start but there's still a long long way to go....

http://lymeywifey.blogspot.co.uk/2013/1 ... eting.html

All the best,
Nicola Seal (Lymeywifey).

Lorima
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Joined: Mon 29 Oct 2007 20:47

Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Lorima » Tue 22 Oct 2013 19:01

Thanks very much, Nicola, for posting the link to your notes.

I just read them - very informative. I appreciated your parenthetical comments, too; they seem realistic and insightful.

Best wishes for better health,
Lorima
"I have to understand the world, you see."
Richard Feynman

Joanne60
Posts: 110
Joined: Mon 13 Feb 2012 15:49
Location: Guildford Surrey UK

Re: PUBLIC HEALTH ENGLAND LYME DISEASE MEETING

Post by Joanne60 » Mon 10 Mar 2014 9:54

Following on from the PHE meeting in October an NHS specialist Lyme clinic was started up in Winchester headed up by Dr Dryden, who has experience of dealing with about 500 acute Lyme disease cases.

There seem to be mixed reports back from patients he has seen, but he does sound to be more open minded than most NHS doctors I have spoken with. No doubt if he follows this patient group with an open mind and a desire to tease out the science, we may in time benefit from his approach, which in turn could feed back for best practises for other doctors, especially as the guidance on PHE website is to be updated.

However rumours that the clinic had problems over funding indicated that the clinic would soon close.

I made enquiries and this was the reply from Dr Brooks RIPL
http://lookingatlyme.blogspot.co.uk/201 ... cs-in.html

All sounding hopeful, except that left and right arm are saying different things and patients are now told the clinic will close at the end of March, due to problems over funding.

Lyme disease Action seem to be in the dark to http://www.lymediseaseaction.org.uk/wp- ... b-2014.pdf

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