The more specific the questions get, the more I see I have in common with other Lyme/PTLDS sufferers. It's funny because these things are hard to explain to people who have not experienced the exhaustion associated with these mental exercises.
Please include among the "wrong word choices" emotions the option "frustration".
And the next one:
Maybe add prolonged social contact or situations - such as a family holiday dinner?Do prolonged bouts of concentration or focus cause fatigue or cognitive issues? __No__Yes. If yes, please indicate where appropriate, and please identify the appropriate time frame that pertains to when symptoms begin :
___Driving. Please explain:________________________________________________
___Watching TV. Please explain:_____________________________________________
___Watching a loved one in a school sport.Please explain:____________________________________________
___Precision-required processes such as knitting or gardening or measuring. Please explain:______________
___Other. Please explain:_____________________________________________________________________________________________________________
Camp Other said:
I think the longer the survey is, the fewer skewers there will be. It would take too much time for a casual passer-by to put in the effort. Plus, all the VERY specific lab blood work questions will give them away. I am a big fan of as few write-in questions as possible, but it might be a good way to weed out anyone who hasn't truly had the blood-work done or who might be inclined to lie about their results.But anonymity brings with it its own issues, which I brought up earlier: How does one confirm that someone has seen a doctor for their diagnosis and that they currently are being treated or have recently been treated by a doctor for Lyme disease?
Anonymity is important to encourage patients to fill out the questionnaire, in my opinion. But, this questionnaire may turn out to be a rather useful tool for doctors to evaluate the status of patients' health, in which case, of course, the person's identity would be known to the doctor.
Remember: a person may live in a non-Lyme-endemic area and may not have been given a blood test, but they have a majority of the symptoms of it - possibly even including the bulls-eye rash. After the data is tabulated, it can be sorted by blood test results or suspected Lyme WITH the bulls-eye rash.
This way we may be able to catch more cases across the US and Canada and Europe where doctors are telling people Lyme does not exist.
Duncan - Ever since all this brain and spine inflammation, it is so strange - I can talk about complex mathematical concepts, but cannot count 30 days until my next medication refills because some months have 31 days, and for some reason, trying to count that out on a calendar just escapes me. (Luckily, I have a very nice pharmacist to assist me!)
There are many examples like this for me. That's why I was so excited to read about the results of that Chronic Fatigue (ME) experiment that SPECT (or was it MRI?) scanned the brains of CFS/ME victims and found that subjects had inflammation in very specific regions of the brain. The part of the brain responsible for simple every-day tasks was inflamed while another region responsible for abstract thought was not.
So, yes, I think different types of mathematics must be done in different parts of the brain - it's not all left-brain/right-brain anymore!
I'm sorry. What do you mean by this?I mean, it's not just which region or compartment Lyme may gravitate toward, but if there is such a thing as Lyme vasculitis for instance, the damage could be perfused, at least theoretically.