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Acrdermatitis Chronica Atrophicans

Posted: Fri 18 Sep 2015 4:38
by Frank
I was infected with Borrelia Afzelii November 2010
on holiday in Austria. Correct diagnosis took
over two years as this infection is not expected in
Australia. One coarse of Doxycycline followed by
another six months later has helped with symptoms
but still not clear of it fully with some lower level
symptoms still restricting a full recovery.

My main worry is the Acrdermatitis Chronica
Atrophicans mainly on my left foot. The rash has
now been there for around three years.

Other lingering symptoms include joint pain,
itchy skin, sleeping problems, eye soreness
and muscle weakness.

I suspect I am not fully clear of the infection but I am
not sure? After consulting numerous specialists, I
have not found one in Australia with any practical
experience with treating Lyme.

I would like to return to Austria to consult a doctor
with experience successfully treating Borrelia Afzelii
and especially Acrdermatitis Chronica Atrophicans.

Could anyone please suggest any doctors practicing
with this specialty in Austria that I might be able to
contact?

Re: Acrdermatitis Chronica Atrophicans

Posted: Fri 18 Sep 2015 8:31
by RitaA
Hi Frank,

Welcome to LymeNet Europe. I really hope that you are able to find a doctor in Austria who is able to help.

While I'm unable to personally recommend any particular doctor, I did a PubMed search using “Acrodermatitis chronica atrophicans” to get an idea of who (in Austria) has experience in treating people with ACA. Two names that stood out are:

Dr. Elisabeth Aberer

https://forschung.medunigraz.at/fodok/s ... n=90068406
Professor and Doctor Elisabeth Aberer
Department of Dermatology and Venerology

EMail: elisabeth.aberer@medunigraz.at

Tel: 0316-385-13365

and

Dr. Robert Müllegger

http://www.meinarzt.net/muellegger

https://translate.google.ca/translate?h ... rev=search
Curriculum vitae:

Specialist training at the University Clinic of Dermatology and Venereology in Graz;
Additional training at the Department of Dermatology at Harvard Medical School in Boston
Additional training at the Department of Dermatology of Tufts University School of Medicine / New England Medical Center in Boston
Although not listed in the link above, I believe the following contact information is current:

Address: Eyerspergring 7, 2700 Wiener Neustadt, Austria

Phone: +43 676 9338802

Email: robert.muellegger@wienerneustadt.lknoe.at


This may not be the answer that you're looking for, but at least it's a start. Medical professionals are sometimes quite generous with their time and knowledge when contacted by patients in another country. This is especially true if you are unable to find a doctor specializing in a particular field within your own country. For example, I live in Canada and have received great advice from doctors in the U.S. regarding two unrelated medical conditions.

Best of luck!

Re: Acrdermatitis Chronica Atrophicans

Posted: Mon 21 Sep 2015 10:15
by Frank
Thanks Rita,
Very helpful information.

Re: Acrdermatitis Chronica Atrophicans

Posted: Mon 21 Sep 2015 13:26
by Lorima
It sounds as if you are now in Australia, Frank. The best-known doctor there who understands Lyme disease (LD) is Peter Mayne. He may have retired, but there is an association of LD-aware people:
http://www.lymedisease.org.au

Contact them: they may know of an Australian doctor who can help.

Here's a good article explaining the problem:

https://www.thesaturdaypaper.com.au/201 ... 3032001890

It's not easy to get thoughtful treatment for late-stage LD anywhere now, through the usual channels. You'll have to navigate it for yourself.

Watch out for expensive magic potions and devices; there are a lot of scams filling the vacuum left by mainstream medicine's wrong turns, in the LD field.