Since some of the info about me have ended up in the ”wrong topics” I give you the info again, as a presentation of me:
I possibly have had Lyme since summer 1997, I am on full time sick leave since fall 1999, and I am now on Lyme treatment prescribed by an endocrinologist, since our "Lyme experts" have denied me treatment due to a lot of stupid excuses. I give you two of the excuses: "Cystic form of Lyme does not exist" and "everybody have produced Lyme antibodies in their blood after 6-8 weeks" (I am immune deficient, and might not be able to produce any antibodies.)
My treatment for the moment is: 3g/day of Amoxicillin and it is prescribed for 2 months, but I already know that this is not enough.
Why the endocrinologist is treating me, is because I maybe have another secondary disease that could be caused by Lyme, SIADH:
“Some of the causes of SIADH are listed below:
• Central nervous system disease - Tumor, trauma, infection, cerebrovascular accident, subarachnoid hemorrhage, Guillain-Barré syndrome, delirium tremens, multiple sclerosis”
I have no thyroidproblem (what I know of).
Our Swedish Lyme community/association (you have to be a member to join the Swedish Lyme forum):
The Norwegian Lyme forum/board (I take part in this too):
http://sunshine35446.yuku.com/forum/vie ... /borrelia/
And they also have an English part:
http://sunshine35446.yuku.com/forum/vie ... tags/lyme/
I think the Norwegian doctors (at least one of them) are better in Lyme treatment than the Swedish doctors!
In Norway they combine some medicine that could reach the cystic form of Lyme, with some other antibitotics, and the treatment is much longer in Norway compared to Sweden.
And I have got the result from a Swedish Western blot today (not showing bands), and my IgG was negative but my IgM was IND (indeterminate).
I give you some info about that:
http://www.healingwell.com/community/de ... 0&m=830547
"IND means that it was not enough to be positive, but also not enough to be negative. My LLMD says that you should treat the IND as a positive."
The problem is, I can’t afford to go to USA, and we totally lack LLMD:s in Sweden.
Carina from Sweden