LNE Forum Policy and much much more

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Spanky
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Re: LNE Forum Policy and much much more

Post by Spanky » Fri 19 Oct 2012 18:22

"tosho":
I don't know - maybe you have trouble accepting what I said earlier what is considered to be rude.
No, I don't know what it is that you consider to be rude, as you are not bothering to provide ANY examples of this...other than to say that you think that I am rude.

Which really doesn't cut it, I'm afraid.

Here, for example, are some posts by another poster here. Tell me what you think of this language...do you think that this poster is rude?

Biased, as well, perhaps?
There is nothing wrong with not "playing nice" towards those who are responsible for ruining peoples' lives (I am not saying that intentionally, but the overall effect).
It is always striking me that people like Henry or Bagge or sometimes you, Spanky, point-out so carefully every single mistake that patients or doctors who decide to treat longterm tickborne diseases do, whereas at the same time you seem not to be bothered by the fact that the same patients were left with no diagnosis and no treatment for years, many of them actually suffering of active tickborne infection(s) (staying quiet about that or silence is usually your way of response). There is simply no honour in this behaviour. And don't confuse my statement as a defence of the ILADS or "LLMDs" as I don't like this organisation.
Discussing the evidence - what is the value of the EBM that the IDSA presents when it does not reflect the reality? (in other words when a patient with OBVIOUS tickborne infections is left with no diagnosis and/or with no effective treatment). The guidelines were made prematurely, and they cause a great harm to many people.
Even if there is some quackery related to the topic of biofilms treatment, this is still nothing compared to the horrible consequences of flawed IDSA guidelines.
You are one of those guys for whom the more important is "hard data" than peoples' lives, so don't expect respect from my side.
think, RitaA, there is no sense to waste time for discussions with Spanky. If people who improve on long-term antibiotics or any other unofficial therapy means nothing for Spanky, then any further discussion is unnecessary. We just need to accept that there are people for whom the more important is current scientific data than people's recoveries that don't "fit" the current scientific data.
Moreover, I think that Spanky is embittered (and I can understand that), because his/her thyroid problems were misdiagnosed as a chronic Lyme (if I understood it correctly).
I guess I am sensing both a hostitlity towards the IDSA, as well as this "Spanky" person...according to this poster...this 'Spanky' person is not deserving of respect...embittered...and lacks "honour".

That's pretty aggressive ad hominem stuff, there, don't you think?

What would you suggest that the Admin do about this poster?

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Re: LNE Forum Policy and much much more

Post by X-member » Fri 19 Oct 2012 18:47

In the Swedish borreliaforum the posts from the member that have been told (by admin) to behave in a better way, is removed if this member continues to argue about it. No matter who this member is arguing about it with.

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Spanky
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Re: LNE Forum Policy and much much more

Post by Spanky » Fri 19 Oct 2012 18:51

"Carina":
In the Swedish borreliaforum the posts from the member that have been told (by admin) to behave in a better way, is removed if this member continues to argue about it. No matter who this member is arguing about it with.
Earth calling Carina...?

The poster in the above examples is Tosho.

Understand the point? By asking him/her what he/she thinks should be done about this...I am asking him/her to take a look at his/her own behavior and ask him/herself whether he/she is "rude"... whether Tosho is guilty of what he/she (which is it?) is charging others with.

'Hypocrisy', I think it's called...

"Let he without sin among you..." :D

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Re: LNE Forum Policy and much much more

Post by X-member » Fri 19 Oct 2012 18:58

Spanky:
"Let he without sin among you..."
..let him cast the first stone at HER.

John 8:7

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Re: LNE Forum Policy and much much more

Post by X-member » Fri 19 Oct 2012 19:01

I suggest that what is done in the Swedish borreliaforum can be done in this forum, if one member continues to argue with what admin has said.

Bagge
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Re: LNE Forum Policy and much much more

Post by Bagge » Fri 19 Oct 2012 19:06

tosho wrote:Bagge - if you want to be objective don't forget mentioning those, who were harmed (misdiagnosed, not treated, under-treated, or falsely informed) by the ID specialsts, as this is rather large gruop of people. Any harm being done to patients should be criticized, doesn't metter if it comes from ID specialists or LLMDs.
Agreed, Tosho. However, in order to be objective, one must not be influenced by their personal feelings or opinions in considering and representing facts. The fact of the matter is that I have no personal and direct knowledge of anyone who was, as you say "harmed (misdiagnosed, not treated, under-treated, or falsely informed) by the ID specialsts". In the absence of such facts, I withhold forming any opinion or any conclusions as to the alleged misdeeds or harm imposed by ID doctors.

It is blatantly apparent that one can not trust the statements and allegations made by certain groups and individuals as to this widespread harm being imposed on Lyme disease patients by the CDC, IDSA or society as a whole. I will once again quote the blogger Relative Risk here, but I assure you I have formed my opinion based on my own knowledge and experiences. My highlights added,

http://www.relative-risk.blogspot.com/2 ... epeat.html
I couldn’t agree more, but then Stricker already has violated the public trust by falsifying research data. As for the free marketplace of ideas, Lyme activists have a demonstrated a disdain for that kind of laissez-faire thinking through a well-documented history of staged protests, harassment, accusations, lawsuits, death threats, stalking, deceitful propaganda and questionable financial conflicts.
.

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Spanky
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Re: LNE Forum Policy and much much more

Post by Spanky » Fri 19 Oct 2012 19:25

"Carina":
I suggest that what is done in the Swedish borreliaforum can be done in this forum, if one member continues to argue with what admin has said.
Like this, Carina?

http://www.lymeneteurope.org/forum/view ... 6&start=50
by Carina » Fri 19 Oct 2012 16:17

WHEN there have been problems it has mostly been when chronic Lyme BORRELIOSIS have been used in studies (or in posted information) in this forum. This stands for late Lyme disease/borreliosis, and has NEVER (what I know of) been used for anything else.

People in Europe can have this diagnosis from their physicians.

Some of the problems (in this forum) have come when some person (s) from US, miss that it (in the information or the studies) says: BORRELIOSIS and not disease (after the words: chronic Lyme).

Can we really tell people or physicians not to use this EUROPEAN (international?) diagnosis/definition, in this forum?

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Re: LNE Forum Policy and much much more

Post by X-member » Fri 19 Oct 2012 19:31

Spanky, do you not think that people from Europe (or studies or information from Europe) should be understood in this Lyme forum?

What do you think happens next time some new member (from Scandinavia, Europe or maybe Russia) talk or ask about her (or his) chronic Lyme borreliosis?

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Spanky
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Re: LNE Forum Policy and much much more

Post by Spanky » Fri 19 Oct 2012 19:38

"Carina":
Spanky, do you not think that people from Europe (or studies or information from Europe) should be understood in this Lyme forum?
Off-topic.

I was just repsonding to your suggestion about what should be done about people who continue to argue with the Admin.

That would be you, wouldn't it?

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Re: LNE Forum Policy and much much more

Post by X-member » Fri 19 Oct 2012 19:41

Spanky:
Off-topic.
Ok, post your "concerns" about what I wrote in the other topic, in THAT topic instead.

Thank you!

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