Topics with information and discussion about unconventional diagnostic and treatment methods, and unconventional views.
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Bagge
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by Bagge » Tue 15 May 2012 16:47
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http://neurotalk.psychcentral.com/thread54051.html
I-Team Follow-Up: False Hope
Reporting
Jim Osman
PHILADELPHIA (CBS 3) ― There are major developments in the wake of CBS 3 I-Team Investigation of a local woman who calls herself a doctor.
We recently learned that Dr. Patricia Kane, who is not a medical doctor but treated patients at the Haverford Wellness Center, no longer works at the facility in Havertown.
Earlier this year, the I-Team started investigating Kane after uncovering stories from patients like Jeff Repetto, a California man, who spent $50,000 on Kane's treatments.
Repetto says Kane, who claims to hold a PhD, told him that he didn't have ALS which is also known as Lou Gehrig's disease.
ALS is a terminal illness which ravages the muscles. He says Kane told him he simply had a build up of toxins. His disease continues to progress and today he can no longer speak.
Janine Schiller, a Bucks County woman, who was diagnosed with ALS by doctors, told us a similar story.
In April, Janine, who struggled to speak to us because of her progressing disease, described how Kane took thousands of dollars from her for treatments. She said Kane told her that she wasn't dying.
On August 29th, Janine, a wife and mother of three, died from complications of ALS.
"I think that's one of things that is so stark now, is that Janine was so alive and so vivacious and this house is so empty," said her husband Tim. "You know there's a big hole here."
Janine didn't live long enough to hear the news that her husband says would have put a smile on her face. The news that Kane is no longer working at the Haverford Wellness Center.
After repeated requests for an interview that were denied by Kane, we recently met Dr. Domenick Braccia on the way out of the Haverford Wellness Center where Kane saw patients.
Dr. Braccia is the medical director at the Haverford Wellness Center who has also denied our repeated requests for an interview.
When we caught up with Dr. Braccia as he left the center, we asked him for his reaction to Kane's statements telling patients with the terminal disease that they were not dying.
"That is unfounded, that doesn't happen," said Braccia as he walked to his car.
As the center's medical director, Dr. Braccia has known for months about the I-Team investigation and the subsequent inquiry by the Pennsylvania Medical Board. Even so, he repeatedly refused our requests for an interview.
And he refused again to respond on the day we showed up to press for answers.
This week, the CBS 3 I-Team learned that Patricia Kane's biography and picture were pulled from the Haverford Wellness Center's website.
She no longer has a job there.
"Janine would've been so pleased, she didn't want anyone else taken advantage of like we had been," said her husband days after he laid his wife to rest.
Since our investigation began, Kane has refused to provide us with her credentials and did not connect us with the clients she says have benefitted from her treatments for ALS.
It is not clear whether Kane was fired or resigned.
A lawyer for the Haverford Wellness Center would only tell us that Kane is no longer associated with the center and had no further comment.
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Bagge
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by Bagge » Tue 15 May 2012 16:52
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http://www.wellnesstimes.com/health-res ... e-protocol
The Patricia Kane protocol, often called the PK protocol, is a three-part program to treat amyotrophic lateral sclerosis (ALS) and other neurological disorders. It includes multiple daily infusions of intravenous (IV) phosphatidylcholine (often referred to as PC or PhosChol) and glutathione, a special nutrient-dense diet that limits the intake of carbohydrates and oral supplements.
Patricia Kane, Ph.D., has claimed that this protocol "successfully reverses" ALS and has improved symptoms connected with other neurological problems, such as microbial infections, chronic fatigue immune dysfunction syndrome (CFIDS), Lyme disease, fibromyalgia, autism, mood disorders, Parkinson's disease, Alzheimer's disease, and multiple sclerosis.
Patricia Kane specializes in treating metabolic disorders and lipid disturbances with targeted nutritional intervention. (There is a lack of information about the area in which Kane earned her Ph.D.) She and her husband, Edward Kane, promote their New Jersey-based business, BodyBio, which provides nutritional diagnostic reports to healthcare providers. The company also manufactures and sells vitamins, minerals, and supplements to providers and consumers. Information on this site states that Kane's primary interest is in fatty acids, nutritional biochemistry, cell membrane function, and neurological disturbances and that she has long been interested in seizure disorders, autism, traumatic brain injury, multiple sclerosis (MS), ALS, Parkinson's, CFIDS, and heavy metal toxicity.
Patricia Kane, with coauthors Neal Speight, M.D., and John S. Foster, has written two books: one version for healthcare providers and one version for patients. Both are titled The Detoxx Book: Detoxification of Biotoxins in Chronic Neurotoxic Syndromes.
According to some secondary sources, Patricia Kane may have practiced at the Haverford Wellness Center in Havertown, Penn.
ALS is a progressive disorder that is characterized by a gradual degeneration of the nerve cells in the central nervous system that control voluntary muscle movement. The Over time, ALS causes muscle weakness and atrophy, eventually paralyzing the muscles. It becomes increasingly difficult to perform everyday activities, such as eating and breathing. ALS almost always results in death, often within 2-5 years from the time of diagnosis, because there is no cure. The ALS Association notes that fewer than one-quarter of all ALS patients live for five or more years after diagnosis, and 10% live longer than 10 years.
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Bagge
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by Bagge » Tue 15 May 2012 17:23
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Note that this is posted in the Unconventional Methods section
http://www.borelioza.org/materialy_lyme/hr.pdf
Page 1
LYME DISEASE AND OTHER TBD’S
Designing Individualized Treatment Regimens Based On Symptomatology and Testing
Richard I. Horowitz, MD
Hudson Valley Healing Arts Center
Hyde Park, NY
<snip>
Page 63
<snip>
Differential Diagnosis & Treatment
13) Neurotoxins/ Brain fog:
-trial IV GSH (oral, nasal, rectal, dermal)
-Questran vs Wellchol & Actos
-Provigil, Namenda, Aricept, PC, PS, Gingko
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Bagge
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by Bagge » Tue 15 May 2012 17:39
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(HIghlights and italics added)
http://www.bodybio.com/content.aspx?page=aboutus
<snip>
Dr. Patricia Kane serves as Director of Medical Research at BodyBio, having developed a biomedical analysis system for fatty acid and biochemical testing. She also serves as Director of the NeuroLipid Research Foundation, a nonprofit organization, in Millville, NJ.
<snip>
Dr. Kane has had a long-standing interest in the challenging area of the treatment of severe neurological disorders such as ALS, Parkinson's Disease, Multiple Sclerosis, Alzheimer's, Autism, pervasive developmental delay, seizure disorders, Post Stroke, traumatic brain injury, metabolic and genetic abnormalities. She has developed an intravenous protocol called the PK Protocol for these devastating health disorders using IV Lipid therapy and oral fatty acid supplementation that has yielded marked positive responses.
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Bagge
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by Bagge » Fri 28 Sep 2012 0:07
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This is a related discussion from another forum.
I've been reading a bit more about this person and her protocols, which are in part used by other 'LLMDs'. It is truly disheartening to read about what seems to be the apparent and continuing exploitation of ALS patients. It is also interesting to notice on which forums all talk of her is banned, as opposed to places where patients can openly talk of their experiences, for better or worse.
You can search on her name and read more
here.
Her apparent curative claims remind me of
this post on LymeNetEurope.
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